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Regional Commissions
Chapter Reports
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Albanian
League Against Epilepsy
Jera Kruja, President
UHC Mother Theresa
Service of Neurology
Dibra St. 372
Tirana
ALBANIA
Phone: +355 68 21 80097
Fax: +355 43 62 641
Email:
Ali Kuqo, Secretary General
UHC Mother Theresa
Service of Neurology
Dibra St. 372
Tirana
ALBANIA
Phone: +355 69 21 32 783
Fax: +355 43 62 641
Mira Kapisyzi, Treasurer
UHC Mother Theresa
Service of Neurology
Dibra St. 372
Tirana
ALBANIA
Phone: +355 43 62 641
Fax: +355 43 62 641
Email:
End of term _ December 2003
History
The Albanian Chapter was founded in November 1999. We are
very grateful to Peter Wolf, the General Secretary of ILAE
at that time, who helped us prepare the formal documents.
The number of active members is 18, from different medical
fields: neurology, pharmacology, biochemistry, neuroradiology,
pathology, neurosurgery, and neuropsychology.
The official address is that of University Service of Neurology,
UHC "Mother Theresa," Tirana, Albania, which is
the only academic and scientific center
for neurology in the country.
ALAE has been a provisional member of ILAE since January
2000 and a permanent member of ILAE since May 2001 (Buenos
Aires Congress).
During these four years we have organised six organisative
meetings, two local workshops, two national workshops and
two international workshops, with the participation of all
neurologists and some other specialists from all over the
country.
The most important meetings have been the October 2001 workshop
with the exceptional participation of Giuliano Avanzini, and
the June 2002 workshop with the very appreciated participation
of Emilio Perucca.
Publications
- Epilepsy, Kruja J., Eurorilindja, Tirana 2001
- Epilepsy, a guideline for patients, Tirana 2001
Meetings
- October 2001 _ Epilepsy, mechanisms and genetics (Invited
speakers: G. Avanzini, F. Zara)
- February 2002 _ Traumatic epilepsy (Invited speaker:
De Santis)
- June 2002 _ Conference on epilepsy treatment (Invited
speaker E. Peruca)
- December 2002 _ Surgery of epilepsy (Invited speaker
F. Crotti)
- March 2003 _ EEG course
Summary of activities in 2002 and 2003
- Participation in International Congresses and Conferences
(Buenos Aires, Lisbon, Athens)
- Membership in European Academy of Epilepsy
- Participation in Venice course, July-August 2002: Training
the trainers
- Participation in the Venice course of EUREPA, February
2003
- Short stages of junior neurologists and exchanging experience
visits of seniors in Carlo Besta Institute, Milan, Italy
- Using the computerized programme on epilepsy, kindly
furnished by Carlo Besta Institute
- Set-up of the Epilepsy Unit in the University Service
of Neurology
Summary of activities in relation to Global Campaign
in 2002 and 2003
- During 2001 and 2002 we contacted the local office of
WHO in Tirana and the head office of the Global Campaign,
presenting a broad project on epidemiology of epilepsy in
Albania
- Unfortunately we received no answer from the local office
and even the efforts of De Boer, who kindly supported our
project, didn't achieve any result
- We will appreciate if the Global Campaign will have an
interest in our country
Future plans
- The organisation of a National Registry of Epilepsy
- The epidemiology of epilepsy as a part of a collaborative
project with Mariani Foundation and Mario Negri Institute
_ Milan, Italy
- The organisation of courses on epilepsy diagnosis and
treatment with participation of neurologists, pediatric
and family doctors
Summary Statement
ALAE is one of the youngest chapters of ILAE. We think that
in the future we can do more working with enthusiasm and facing
the difficulties of the actual situation of the health system
in our country. |
Algerian
League Against Epilepsy
Mahmoud Ait-Kaci-Ahmed, President
Hopital All Ait-Idir
Service de Neurologie
Boulevard A. Hahad
16000 Alger
ALGERIA
Phone: +213 21 96 33 28
Fax: +213 21 96 38 25
Email:
Amar Lebiod, Secretary General
Hôpital Parnet
Chief Pediatrics Department
Hussein Dey
16000 Alger
ALGERIA
Phone: +213 21 49 56 21
Saadi Ibrahim, Treasurer
2 Rue Said Guendouz, Immeuble Casora
16000 Alger
ALGERIA
Phone: +213 21 67 76 45
|
Argentinean
League Against Epilepsy
Hector Alberto Waisburg, President
Larrea 1474 PB Dpto 3
1117 Buenos Aires
ARGENTINA
Phone: +54 11 48 06 41 87
Fax: +54 11 48 55 59 04
Email:
Monica Beatriz Perassolo, Secretary General
Cuba 1960, 7a
1428 Buenos Aires
ARGENTINA
Phone: +54 11 44 24 90 85
Fax: +54 11 49 54 71 25
Email:
Néstor Estevez, Treasurer
Publications
- We are trying to prepare a book on epilepsy, which has
been discussed with professionals working in epilepsy during
an important Argentine meeting
- We have organised an Internet site, where we can interact
with professionals. We will also try to answer people's
questions
Meetings
- We have a monthly meeting where we discussed various subjects
and patients with epilepsy
- National meeting between Argentine League Against Epilepsy
and the Argentine Neurology Society (2002)
Summary of activities in 2002 and 2003
- We had meetings in each district of the country to discuss
people with epilepsy
- We met with generalist physicians, neurologists, etc.
answering questions and planning who can do the best epilepsy
diagnosis
- We discussed epilepsy problems with Latin-American professionals
Summary of activities in relation to Global Campaign in 2002
and 2003
- We have been working with lawyers concerning the rights
of people with epilepsy
Future plans
- We will try to actualize the Argentine League's syllabus
(Diagnosis, treatment)
|
Armenian
National League Against Epilepsy
Vahagn Darbinyan, President
Aigedzori 74 St., Apt. 11
375019 Yerevan
ARMENIA
Phone: +374 14 74 931
Fax: +374 13 91 316
Email:
/
Andronik I. Kalaijian, Vice President
ARMENIA
Phone: +374 12 84 070
Email:
Gayane R. Melikyan, Secretary General
Zeytun, Surenyants Str., h 2, Apt. 45
375014 Yerevan
ARMENIA
Phone: +374 14 74 492
Email:
Tatyana Stepanyan, Treasurer
19 Arabkir Str./14, Apt. 9
375051 Yerevan
ARMENIA
Phone: +374 12 57 091
End of the term for the present Executive Committee _ May
2007
Publications
- Darbinyan V, Melikyan G, et al.: Epilepsy and seizure
disorders. FAQ. Parma Print, 2003
- Darbinyan V, Melikyan G, Soukhoudyan B, Yeghiazaryan N:
Guideline for persons with epilepsy. Parma Print, 2003
- Melikyan G, Darbinyan V. Temporal lobe epilepsy: EEG and
MRI correlation. Materials of the First Armenian International
Medical Conference. 2003, 51-54
- Soukhoudyan B, Darbinyan V. Ketogenic diet as an alternative
method for refractive epilepsy. J Erebouni 2003; 3 [In press.]
- Kachatryan S, Darbinyan V. Quality of life in patients
with epilepsy: psychological, emotional and social aspects.
Materials of Jubilee Conference of medical students devoted
to the 55th Anniversary of foundation of students' Scientific
Society of Yerevan Medical University. 2003, 84-86
Meetings
- Advances in Clinical Epileptology. Regular (monthly)
meetings of the First Armenian League Against Epilepsy
- Theoretical and practical issues in contemporary interdisciplinary
clinical neurology (weekly seminars)
Summary of activities in 2002 and
2003
- Basic & Clinical Epileptology, Annual Postgraduate
Review Course 2003, Yerevan, Armenia
- Social integration of patients with epilepsy in communities
of Spitak, Arevashogh, Parni, Jrashen, Research Grant 2003
- Advances in Clinical Epileptology: Classification, Differential
Diagnosis and Treatment. EUREPA Teaching Course, November
2002, Yerevan, Armenia
Future plans
- to organise the EUREPA Teaching Course (October 2004,
Yerevan, Armenia)
- to organise the First Armenian Conference on Epileptology
(May 2004, Yerevan, Armenia)
- to found the Pediatric Comprehensive Epilepsy Centre (September
2003, Yerevan, Armenia)
- to construct the Internet Website for recent information
and epileptological education in English (currently in Armenian
and Russian) (2004)
- to initiate research on epilepsy epidemiology in Armenia
- to organise the Annual Postgraduate Review Course
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Epilepsy
Society of Australia
Sam F. Berkovic, President
Epilepsy Research Institute, Level 1
Neurosciences Bldg., Repatriation Campus -
Austin & Repatriation Medical Centre
Banksia Street
3081 West Heidelberg
AUSTRALIA
Phone: +61 39 49 62 330
Fax: +61 39 49 62 291
Email:
Mark Cook, Vice President
St. Vincents Hospital
Dept. of Neurology
Victoria St.
3002 Melbourne
AUSTRALIA
Phone: +61 39 41 91 855
Fax: +61 39 41 95 411
Email:
David Reutens, Secretary
Epilepsy Research Institute
Neurosciences Inst., A&RMC
Banksia Street
3081 Heidelberg West
AUSTRALIA
Phone: +61 39 49 62 357
Fax: +61 39 49 62 291
Email:
Graeme Jackson, Treasurer
Brain Research Institute
Neurosciences Inst., A&RMC
Banksia Street
3081 Heidelberg West
AUSTRALIA
Phone: +61 39 49 64 076
Fax: +61 39 49 62 980
Email:
Angela O'Connor, Permanent Secretariat
End of term for current Executive 31 December 2003
Publications
Meetings
- Annual Scientific Meeting: Brisbane, Qld, Australia,
November 2002
- Annual Scientific Meeting: Auckland, New Zealand, November
2003
Summary of activities in 2002
and 2003
- Improvements in National Driving Regulations
- Pharmaceutical issues
- Annual Scientific Meetings
- Involvement with local and national community support
groups
- Federal lobbying
- Membership drives
- Travel Scholarships
Future plans
International Committee for enhancement of relations with
neighbouring countries
Summary Statement
Our membership continues to grow. There is increasing interest
and activity in the clinical and research activities relating
to epilepsy.
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Austrian
League Against Epilepsy
Bruno Mamoli, President
2. Neurologische Abteilung
Nathaniel Freiherr von Rothschild´sche Stiftung für
Nervenkranke - Neurologisches Zentrum der Stadt Wien _ Rosenhügel
Riedelgasse 5
A-1130 Vienna
Austria
Phone: +43-1-88000-251
Fax: +43-1-88000-384
Email:
/
Christoph Baumgartner, Secretary
Department of Clinical Epilepsy Research
Neurological University Clinic
Wahringer Gurtel 18-20
A-1090 Vienna
Austria
Phone: +43-1-40400-3433
Fax: +43-1-40400-3141
Email:
End of term: November 2004
Publications
- Mitteilungen der Österreichischen Sektion der Internationalen
Liga gegen Epilepsie (published quarterly, since 2001).
Distributed to all members of the chapter as well as to
all neurological departments and all neurology residents
- Folder Epilepsie: Information for patients, relatives
and the general population
Meetings
- Jahrestagung der Österreichischen Sektion der Internationalen
Liga gegen Epilepsie, Klagenfurt, 8-9 November 2002 (Annual
Meeting of the Austrian Chapter)
- Gemeinsame Jahrestagung der Deutschen Sektion, Österreichischen
Sektion und Schweizerischen Sektion der Internationalen
Liga gegen Epilepsie, Berlin, 3-6 April 2003 (Joint Meeting
of the German, Austrian and Swiss Chapter)
- Herbsttagung der Österreichischen Sektion der Internationalen
Liga gegen Epilepsie, Wien, 7 November 2003 (Fall Meeting
of the Austrian Chapter)
Summary of activities in 2002
and 2003
- Working Groups were established to promote common clinical,
educational and research activities. Consensus statements
and position papers on the following topics were published
by these Working Groups in the
- Mitteilungsblatt of the Austrian Section: Social issues
(1/2001), status epilepticus (2/2002), epilepsy in the elderly
(3/2002), presurgical epilepsy evaluation and epilepsy surgery
(4/2002), MR imaging in epilepsy (1/2003), further topics
planned for publication in 2003 include: prophylaxis, expert
reports in epilepsy
- Other working groups on the following topics are actively
working in the following fields: genetics; women and men
in epilepsy; neurophysiology; febrile seizures; neonatal
seizures; neuropsychology
- A certificate for epileptologists and a certificate for
accredited outpatient seizure clinics were established in
2003
- A Secretariat with a part-time secretary was established
where physicians and patients can call in for information
(Contact: Christine Adler, Phone: +43-1-40400-3728; Fax:
+43-1-40400-3137; email;
/
)
- A Website is maintained providing information for physicians
and patients: http://www.medicalnet.at/oe.sektion-ILAE/
- The Austrian Chapter participated in a study on public
opinion about epilepsy (conducted with the German and Swiss
Chapter)
- Regular teaching courses for emergency physicians on the
management of seizures and status epilepticus are held
- Organisation of the 6th European Epilepsy Congress to
be held in Vienna, 30 May - 3 June 2004
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Participation in a study on public opinion about epilepsy
(conducted with the German and Swiss Chapter)
- Folder Epilepsie: Information for patients, relatives
and the general population
Future plans
- Herbsttagung der Österreichischen Sektion der Internationalen
Liga gegen Epilepsie, Wien, 7 November 2003 (Fall Meeting
of the Austrian Chapter)
- Finishing the position papers on the issues mentioned
above
- Organisation of the 6th European Epilepsy Congress to
be held in Vienna, 30 May to 3 June 2004
Summary Statement
The Austrian Chapter has been quite productive during the
last two years, a regular publication is issued quarterly,
certificates for epileptologists and outpatient seizure clinics
were established, and working groups were established on all
relevant issues in epileptology. The organisation of the 6th
European Epilepsy Congress to be held in Vienna, 30 May to
3 June 2004 is one of the highlights for the Austrian Chapter
for the coming year.
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Azerbaijan
League Against Epilepsy
Sharif I. Magalov, President
99, Shakhbazi Street, Flat 22
Baku
AZERBAIJAN
Phone: +994 12 95 54 67
Email:
Zakir M. Aliyev, Vice President
83, Mir-Jalal Street, Flat 67 Street, 16/8
370065 Baku
AZERBAIJAN
Phone: +994 12 68 26 17
Fax: +994 12 94 85 08
Vafa Magalova, Secretary General
99, Shakhbazi Street, Flat 22
370065 Baku
AZERBAIJAN
Phone: +994 12 39 16 07
Email:
Nailya N. Abasova, Treasurer
3, Ahmedbekov
370065 Baku
AZERBAIJAN
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Belgian
League Against Epilepsy
Thierry de Barsy, President
Centre Neurologique W. Lennox
Allée de Clerlande 6
1340 Ottignies
BELGIUM
Phone: +32 10 43 02 23
Fax: +32 10 43 02 23
Email:
Eric Schmedding, Secretary General
AZ VUB
Dienst Neurologie
Laarbeeklaan 103
1090 Brussels
BELGIUM
Phone: +32 24 77 64 01
Fax: +32 24 77 68 00
Email:
Axel Ceulemans, Treasurer
9 Cohy
4771 Saive
BELGIUM
Phone: +32 43 62 91 51
Fax: +32 43 62 91 51
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BRASIL
Email:
Maria Luisa Giraldes de Manreza, Secretariat
Rua Teodoro Sampaio 741 Apt 94
05405-050 Saõ Paolo
BRASIL
Phone: +55 11 42 15 8 08
Fax: +55 11 85 20 063
Email:
Regina M.F. Fernandes, Treasurer
Ribeirao Preto School of Medicine
Department of Neurology
University of Saõ Paulo
Saõ Paulo
BRASIL
Email:
Carlos Eduardo Silvado, Past President
Avenida Munoz Da Rocha, 98 #211
80035-000 Curitiba
BRASIL PR
Phone: +55 41 35 28 690
Fax: +55 41 26 21 634
Email:
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Bulgarian League against Epilepsy
Dimitar Chavdarov, President
Medical University –Sofia
Alexandrov University Hospital
Department Clinical Neurophysiology
1, G. Sofiiski st. , 1431 Sofia
BULGARIA
Phone: + 359 888 236 337
E-mail:
;
Stojan Bojinov, 1st Vice-President
Medical Uviversity – Pleven
8, G. Kochev st., 5800 Pleven
BULGARIA
Phone : + 359 648 27 226
Dimitar Minchev, 2nd Vice-President
Medical University –Varna
Neurology Hospital, 9000 Varna
BULGARIA
Phone: +359 52302895
Melania Radionova, Secretary-General
Medical University –Sofia
Alexandrov University Hospital
Department Clinical Neurophysiology
1, G. Sofiiski st. , 1431 Sofia
BULGARIA
Phone: + 359 888 232 440
E-mail:;
Veneta Bojinova, Treasurer
Medical University – Sofia
Sv Naum University Hospital
1, L. Rusev st., 1113 Sofia
BULGARIA
Phone: + 3592 989 59 16
- The Bulgarian League Against Epilepsy was founded in 1991 and counts 89 members now.
- In the League were established four permanent commissions on the following topics: 1. Diagnosis and treatment of epilepsy; 2. Epilepsy out of the shadows, 3. Epilepsy and legislation and 4. Epilepsy and network.
- The League systematically works for the introduction of the new diagnostic methods and therapeutic possibilities. The economical problems in the country are the main obstacle for the routine usage of MRI and the wide treatment with the new antiepileptic drugs. The Bulgarian League worked out a Consensus on the diagnosis and treatment of epilepsy in 2002, which was accepted by the National Insurance Fund. With some restrictions the antiepileptic drugs are reimbursed for the patients with epilepsy.
- The cooperation with mass media is of great importance for the program "Epilepsy Out of the Shadows"
- The association carries out 4-5 meetings annually. Teaching courses usually are organized together with pharmaceutical firms. The Bulgarian League organizes an annual meeting on the seaside in Magnolia Hotel, and that is why in Bulgaria “ Magnolia” symbolizes the Campaign against Epilepsy. These meetings are gratuitously supported by Ecopharm . In 2004 was held the 10th anniversary session .
- The last year the Bulgarian branch of ILAE organized a National Conference on Epilepsy with International Participation, 7-10 October 2004. More than 350 Bulgarian physicians participated in the conference. There were 26 oral and 12 poster presentations, addressing various aspects of the diagnosis and treatment of epilepsy. There were five satellite symposiums, organized by Glaxo Smith Kline, Janssen-Cilag , Novartis , Pfizer and Sanopfi-Aventis. Besides the Bulgarian specialists precise expositions in the field of diagnosis were presented by A. Covanis and P. Jovic. The participants were impressed by the presentations of M. Brodie, G. Bouer and P. Genton on the current aspects in the treatment of epilepsy. On the last days of the Conference was held the general meeting of the members of the Bulgarian league against epilepsy and the new executive committee was elected. On the meeting were reported the activities of the past and the prospects for the new 4 year period were made.
|
Burkina
Faso League Against Epilepsy
Kapoune Karfo, President
01 BP 2317
Ouagadougou 01 - Province Du Kadiogo
BURKINA FASO
Email:
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Canadian
League Against Epilepsy
Sam Wiebe, President
London Health Sciences Centre
University Campus
P.O. Box 5339 Stn A
339 Windermere Rd
London
Ontario N6A 5A5
Canada
Phone: +1 51 96 63 39 84
Fax: +1 51 96 63 37 53
Elaine Wirrell, Secretary General
Alberta Childrens Hospital
Department of Pediatrics
1820 Richmond Rd SW
AB T2T 5C7 Calgary
CANADA
Phone: +1 40 32 29 76 83
Fax: +1 40 32 29 76 49
Email:
Elaine Wirrell, Treasurer
Alberta Childrens Hospital
Department of Pediatrics
1820 Richmond Rd SW
AB T2T 5C7 Calgary
CANADA
Phone: +1 40 32 29 76 83
Fax: +1 40 32 29 76 49
Email:
Elout Starreveld, Past President
610-11010 101 Street Edmonton
T5H 4B9 Alberta
CANADA
Phone: +1 78 04 28 95 40
Fax: +1 78 04 28 95 39
Email:
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Chilean
League Against Epilepsy
Cayetano Napolitano, President
San Sebastian 2812 Dpto. 904
Santiago
CHILE
Phone: +56 22 46 16 11
Fax: +56 22 46 16 11
Email:
Cynthia Margarit, Secretary
Garcia de Torres 1365
Santiago
CHILE
Phone: +56 22 45 26 32
Fax: +56 22 45 26 32
Email:
Maria Teresa Luengo, Treasurer
11 Septiembre 1945 Of. 705
Santiago
CHILE
Phone: +56 22 44 35 19
Fax: +56 22 09 25 38
Email:
End of the term for the present Executive Committee: December
2004
History
The Chilean Epilepsy Society has its origin in professionals
of the Group of Epilepsy and of the Chilean League against
Epilepsy.
The Group of Epilepsy was founded 6 December. Their first
directory was formed by Marcelo Devilat and Jaime Godoy, both
elected for the Assembly of 7 professionals. Their objective
was exchange of experiences in scientific thinking, investigation
and teaching. The group grew. The statutes were elaborated
in 1992 and the group received the patronage of the Chilean
Scientific Societies. The scientific and educational activity
of the group organised 7 symposia in the annual congresses
of the societies' sponsors.
In 1998 the First Latin American Congress of Epilepsy was
organised. The group published its bulletin for 6 years, attributed
up to 1998 to the Chilean Magazine of Neuropsychiatry. The
Chilean Group of Epilepsy had as presidents Alejandro of Marinis,
Perla David, Claudia Ferrando, and Manuel Campos, who increased
membership to 21 and raised the level of respect for the Chilean
epileptology.
In April 1998 the president of the International League against
Epilepsy (ILAE), Dr. Jerome Engel, proposed to the presidents
the Chilean League against Epilepsy and of the Chilean Group
of Epilepsy that Chile had the international organisational
pattern to be a dependent entity of the ILAE. Both entities
accepted the offer.
The following month a mixed commission prepared the statutes
of what would be called the Chilean Society of Epileptology.
After 11 months of work, in February 1999, the Commission
approved the statutes for the Chilean Society of Epilepsy
that would be the Chilean chapter of the ILAE and whose objectives
would be scientific investigation, and educational and social
support to people with epilepsy.
In March 1999 the constituent Assembly of the Society approved
the statutes. On 16 September 1999 during the General Assembly
of members of the UAE in Prague, the Chilean Chapter was recognized
Publications
- Chilean Journal of Epilepsy, Editor in Chief: Perla David
- The Chilean Magazine of Epilepsy has the objectives of
educational assistance and development of investigation.
We will investigate the characteristics of epilepsy in Chile,
through the participation of our partners and all the scientific
societies related to this illness. Our goal is to unite
our towns, to know and share more of our experiences of
this illness, especially the development state and the idiosyncrasy
of each one of our countries, and thus unite in the fight
to take epilepsy out of the shadows. This publication would
not have been possible without Perla David, Editor in Chief.
We wish to continue communication among our society and
other societies, Chileans and Latin Americans. The topics
are online on the Website www.epilepsiadechile.com. The
online journal includes
N#1, 2000
N#1, suppl, 2000 I Latin American Congress
N# 2001
N#2003
Psychogenic nonepileptic seizures
Quality of life
S.N.A. and Epilepsy
SUDEP
Photosensibility
Proposed Epilepsy Classification
Jeavons Syndrome
Ethics aspects
Depression in epilepsy
Behavioral problems in children with epilepsy
Syncope
Status epilepticus
Pharmacotherapeutic
Topiramate
Meetings
- II Meetings June 2002, Juan Salina, Quality of Life
- III Meetings June 2003, Perla David, Adverse Effects of
AED
Summary of activities in 2002
and 2003
- National Program of Epilepsy for Chile
- Program of Continuous Education in Epilepsy in Chilean
Society since July 2003
- One Annual Meeting of Epilepsy in Chilean Chapter of ILAE
- One Annual Journal of Epilepsy in Chile (one supplement,
Dec. 2000)
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Latin American Epilepsy day September 9, since 2000
- Patient education in the pediatric hospitals
- Brief communications and bibliography reviews in professional
group second Saturday of every month in the Chilean Chapter
of ILAE (Chilean Epilepsy Society) since 2000
- National Program of Epilepsy for Chile
- Program of continuous education in epilepsy in Chilean
Society since July 2003
- One Annual Meeting of Epilepsy in Chilean Chapter of ILAE
- One Annual Journal of Epilepsy in Chile (one supplement,
Dec. 2000)
Future plans
- Cooperative multidisciplinary clinical trials on Serious
Dermatologic Adverse Effects of AED
- Epidemiology Aspect of Cost of Epilepsy in Chile, Cooperative
Multidisciplinary Pharmacologic Vigilance
- Epilepsy Symposium in the IV Congress of Neurophysiology
Clinic of Latin American and V Chilean Meeting 7-10 October
2004 with the International Federation of Clinical Neurophysiology
in Chile
|
Colombian
League Against Epilepsy
Jaime Fandino Franky, President
Apartado Aereo 604
Cartagena
COLOMBIA
Phone: +57 56 61 81 27
Fax: +57 56 61 81 11
Email:
Judith de Manjarres, Secretariat
Fax: +57 56 61 81 11
Email:
The Colombian League Against Epilepsy has been very active
in the last year. The key task is the organisation of the
XXI Colombian Epilepsy Congress in April next year. Next September
7 we will commemorate Latin American Epilepsy day with the
participation of civil and military authorities as well as
the whole community. We have a attractive program for teachers,
doctors, rehabilitation personnel and the general population.
Our epilepsy surgery program is also very active with almost
600 cases operated on, and the neuropsychological rehabilitation
program devoted to our patients is an example of our daily
effort.
The Colombian League Against Epilepsy has 15 chapters around
the country. |
Congo
League Against Epilepsy
Samuel Mampunza, President
Université de Kinshasa
Faculté de Médicine CNPP
BP 825
Kinshasa XI
CONGO
Phone: +243 88 02 513
Email:
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Croatian
League Against Epilepsy
Vera Durrigl, President
Jurjevska 25
10000 Zagreb
CROATIA
Phone: +385 14 66 82 02
Fax: +385 14 66 82 02
Email:
Ela Kirincic, Vice President
University of Rijeka
Pediatric Clinic
51000 Rijeka
CROATIA
Phone: +385 51 62 16 46
Fax: +385 51 62 31 26
Email:
Branka Marusic della Marina, Secretary
University of Zagreb
Childrens Hospital
10000 Zagreb
CROATIA
Phone: +385 14 60 01 36
Fax: +385 14 60 01 60
Email:
Zdravka Poljakovic, Treasurer
Zagreb University Medical School
Kispaticeva 12
10000 Zagreb
CROATIA
Phone: +385 12 38 83 42
Fax: +385 12 38 83 42
End of term _ Beginning 2004
Publications
- Booklet "Living with Epilepsy" _ part 1
- "Living with Epilepsy — Women and epilepsy"
_ part 2
- Videotape "Living with Epilepsy" (intended for
patient use)
Meetings
- 5th Croatian Symposium on Epilepsy (with international
participation), Osijek, 13-15 June 2002
- Annual meetings (November 2001, 2002 etc.)
- "New trends in treatment of epilepsy"
Summary of activities in 2002
and 2003
- 5th Symposium 2002
- Annual meetings "New trends in treatment of epilepsy"
- Several meetings in different Croatian cities (clinics,
hospitals etc.)
Summary of activities in relation to Global Campaign
in 2002 and 2003
The League organises permanent presentations and educational
courses about epilepsy to improve care for patients with epilepsy,
regarding their accommodation in kindergartens, help to be
accepted in school, getting employment etc.
Future plans
- At the moment two members of our Chapter are participants
in the International course "From basic knowledge to
rational prescribing in epilepsy," 10 to 19 July 2003,
San Servolo, Venice, Italy
- Delegate to the subcommission of Central/Eastern Europe
workshop: "Promoting the role of Central/Eastern Europe
clinical developments of new AED," 17 July, San Servolo
- Two candidates of our Chapter are nominated to the 5th
EUREPA trainer course by Pruhonice/Prague, Czech Republic,
19-23 November 2003
|
Cuban
League Against Epilepsy
Salvador Gonzalez Pal, Secretary General
Avenida Independencia 26520
12200 Ciudad Habana
CUBA
Phone: +53 74 51 688
Fax: +53 74 51 512
Email:
Luisa Paz Sendin, Secretary
Calzada de Buenos Aires 104
12200 Ciudad Habana
CUBA
Phone: +53 87 05 719
Email:
Luisa Paz Sendin, Treasurer
Calzada de Buenos Aires 104
12200 Ciudad Habana
CUBA
Phone: +53 87 05 719
Email:
|
Czech
League Against Epilepsy
Ivan Rektor, President
Milan Brazdil, Secretary
Miroslav Kalina, Treasurer
Milan Brazdil, Secretariat
Department of Neurology
University Hospital U sv. Anny
Pekarska 53
Brno, 602 00
Phone: +420543182624
Fax: +420543182624
Email:
Officers elected on 12 April 2003 for four years.
Publications
Soubor minimálních diagnostických a
terapeutických standardù u pacientù s
epilepsií
I-VII. (Diagnostic and therapeutic standards for patients
with epilepsy)
- The first seizure, rational pharmacotherapy for epileptic
seizures, management of refractory epilepsy
- II- The stages of epilepsy and quality of life, rational
therapy for epileptic syndromes, epilepsy surgery
- III- Women and epilepsy
- IV- Psychological assessment and epilepsy, non-epileptic
seizures
- V- Epilepsy and sleep, photostimulation, neuroimaging
- VI- First-aid during epileptic seizure, status epilepticus
- VII- Assessing fitness to drive in people with epilepsy
EPISTOP, Maxdorf/Mediforum 2002, ISBN 80-859-12-88-0
Meetings
- April 2002: The Day of the Czech League against Epilepsy,
Brno
- September 2002: VI. Postgraduate Course on Epilepsy, Pruhonice
- December 2002: Congress on Clinical Neurology, Prague
- April 2003: The Day of the Czech League against Epilepsy,
Brno
- September 2003: VII. Postgraduate Course on Epilepsy,
Pruhonice
Summary of activities in 2002
and 2003
- Participation in EURAP, member of EUREPA (1st trainer
Vladimir Komarek). Participation in EpiStop working group,
a voluntary association of people interested in improving
the quality of life of children, adolescents and adults
with epilepsy. Modifications and amendments of outdated
legislation. Cooperation with Ministry of Labor and Social
Affairs and Ministry of Health of Czech Republic.
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Participation in the educational activities of EpiStop.
Education of children in schools: What is epilepsy? (questionnaire,
animated film, and drama)
- Cooperation with the patient organisation "Association
E"
- Surveys, radio and TV shows, articles, exhibitions; HelpLine,
www pages
Future plans
- A new system of comprehensive care of patients with epilepsy,
which will have four levels. Part of this system will be
postgraduate education of neurologists, to manage care of
patients with refractory epilepsy.
- Continue in cooperation with EpiStop and "E spolecnost"
("Association E")
- Continue to improve legislation.
Summary Statement
The Czech chapter now has 112 members. Comprehensive epilepsy
centres have been established in Prague and Brno that offer
all aspects of medical and surgical treatment of epilepsy.
The annual postgraduate course on epilepsy and the Day of
League are held annually. The Czech League cooperates with
the task force group EpiStop and self-help patients' organisation
"Association E."
|
Danish
Epilepsy Society
Anne Sabers, President
Glostrup Amtssygehus
Epilepsy Clinic
Ndr. Ringvej
DK 2600 Glostrup
DENMARK
Phone: +45 43 23 30 29
Email:
Peter Uldall, Vice President
Rigshospitalet
Department of Child Neurology
Blegdamsvej 9
DK - 2100 Copenhagen
DENMARK
Phone: +45 35 45 35 45
Fax: +45 35 45 67 17
Email:
Jakob Christensen, Secretary
University of Aarhus
Department of Pharmacology
Bartholinbuildning
DK-8000 Aarhus
DENMARK
Phone: +45 89 42 17 23
Email:
Anne Haase Juhl, Treasurer
Viborg Sygehus
Department of Clinical Neurophysiology
Heibergs Alle
DK - 8800 Viborg Sygehus
DENMARK
Phone: +45 89 27 27 27
Fax: +45 89 27 34 69
Email:
Troels W. Kjaer, Board Member
Rigshospitalet
Department of Clinical Neurophysiology
Blegdamsvej 9
DK-2100 Copenhagen
DENMARK
Phone: +45 35 45 35 34
Email:
Christian Pilebaek Hansen, Board Member
Danish Epilepsy Hospital
Kolonivej 1
DK-4293 Dianalund
DENMARK
Phone: +45 58 26 42 00
Email:
Per Sidenius, Board Member
Aarhus Kommunehospital
Department of Neurology
Norrebrogade 44
DK-8000 Aarhus
DENMARK
Phone: +45 89 49 33 33
Email:
Meetings
- 2003: New methods in diagnosing epilepsy
- May 2002: Sleep and Epilepsy
- October 2002: Diagnosis and management
- April 2003: Non-epileptic attacks
- September 2003: Epilepsy and Headache
Summary of activities in 2002 and 2003
- Continued work with establishing of a national Epilepsy
Database
- Started working groups to make new national guidelines
for diagnosing and management of epilepsy
Future plans
- Establish the work with new guidelines
- Organise and make plan for new scientific meetings
|
Dominican
Republic League Against Epilepsy
Diogenes Santos Viloria, President
Calle Osvaldo Baez N 13
Gazcue Santo Domingo
REPUBLICA DOMINICANA
Phone: +1 80 96 87 20 90
Fax: +1 80 96 82 74 70
Email:
Milagros Gomez Almanzar, Secretary General
Centro Medico Escano
Calle Dr. Delgado 2
Santo Domingo
REPUBLICA DOMINICANA
Phone: +1 80 96 87 20 90
Fax: +1 80 96 82 74 70
Email:
|
Ecuadorian
League Against Epilepsy
Arturo Carpio, President
PO Box 0101-719
Cuenca
ECUADOR
Phone: +593 78 30 127
Fax: +593 78 85 957
Email:
Eduardo Arizaga, Vice President
Consultorio Medico Pichincha
Veintimilla 1078 y Paez
Quito
ECUADOR
Phone: +593 22 52 88 29
Alberto Vazquez, Secretary General
Centro Regional de Epilepsias "Ciudad de
Cuenca"
Hospital Vicente Corral Moscoso
Av 12 de Abril s/n
Cuenca
ECUADOR
Phone: +59 37 81 56 20
Fax: +59 34 39 49 95
Email:
Noemi Lisanti, Treasurer
Consultorios Medicos Santa Ana
Av. 12 de abril y av. Paucarbamaba
Cuenca
ECUADOR
Phone: +593 78 83 216 / +593 78 80 217
Email:
|
Egyptian
Society Against Epilepsy
Farouk Koura, President
Cairo University
Head of Neurology Department
13 Yossef El Gindy - Falaki Squ.
1111 Cairo
EGYPT
Phone: +202 39 3 115
Fax: +202 33 65 920
Tarek Tawfik, Vice President
Ahmed T. El-Ghonemy, Secretary General
32 Falaqi Street
1111 Cairo
EGYPT
Phone: +20 12 214 99 91
Fax: +202 335 68 94
Email:
Mahmoud Allam, Treasurer
102 Nile Street Kholafa
Dokki Giza
EGYPT
Phone: +202 33 54 622
Fax: +202 36 44 912
Meetings
- Sharm El Sheikh Epilepsy Conference
- Symposium, Update in Epilepsy meeting (every three months)
Summary of activities in 2002
and 2003
- Research work on some new treatments and their application
for patients suffering from epilepsy, with the assistance
of specialized pharmaceutical companies
Summary of activities in relation to Global Campaign
in 2002 and 2003
Distribution of handouts on the following subjects:
- Information on epilepsy for the general practitioner
- Booklets on the definition of epilepsy
- Booklets on epilepsy for patients' close family and relations
Future plans
- Regular periodical committee meetings every three months
- Regular meetings with personnel dealing with epilepsy
such as family, physicians or nurses
|
Estonian
League Against Epilepsy
Valentin Sander, President
Tallinn Children's Hospital
Tervise 28, 13419 Tallinn
Estonia
Phone: +372 6977 190
Fax: +372 6977 143
Email:
Sulev Haldre, Member of the Board
Department of Neurology and Neurosurgery
University of Tartu
Puusepa 2, 51014 Tartu
Estonia
Phone: +372 7 421 440
Email:
Eve Õiglane, Member of the Board
Department of Pediatrics
Tartu University Clinics
Lunini 6, 51014 Tartu
Estonia
Email:
Publications
- Defended thesis for PhD degree by Marju Herodes: "Quality
of Life of People with Epilepsy In Estonia"
Meetings
2002
- meeting of Estonian LAE - epidemiology of epilepsy in
Estonia, Lecture of Emilio Berucca: AEDs of newer generation
2003
- meeting of Estonian LAE - current status of management
of status epilepticus
- Lecture course on epilepsy accredited by EUREPA at Baltic
Congress of Neurology
- Cooperation with Baltic Child Neurology Association to
organise First Joint Conference of Scandinavian Neuropediatric
Society and Baltic Child Neurology Association
Summary of activities in 2002
and 2003
- Created Website of Estonian LAE in cooperation with Estonian
Epilepsy society
- Adopted guidelines for management of epilepsy in Estonia
- Strengthening of cooperation with chapters of Eastern
and Central Europe, meeting in Venice
- Negotiations with health insurance, ministry of social
affairs and state agency of medicine to reimburse newer
generation AEDs
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Joint public meetings of Estonian Epilepsy Society and
Estonian League Against Epilepsy
Future plans
- Development of guidelines for management of status epilepticus
|
Finnish
Epilepsy Society
Matti Sillanpää, President
Departments of Child Neurology and Public Health
20014 Turku University
Finland
Phone: +358-2-333 7368
Fax: +358-2-333 8439
Email:
Reetta Kälviäinen, Secretary General
Department of Neurology, Kuopio University Hospital
P.O. Box 1777, 70211 Kuopio
Finland
Phone: +358-17-173311
Fax: +358-17-173031
Email:
Jukka Peltola, Treasurer
Department of Neurology, Tampere University Hospital
P.O. Box 2000 33521 Tampere
Finland
Phone: +358-3-2472713
Fax: +358-3-2474351
Email:
Publications
- Abstract book of the Kuopio Epilepsy Symposium 2002
Meetings
- Finnish Epilepsy Society (ILAE Chapter) and Finnish Epilepsy
Association (IBE chapter) arranged together Kuopio Epilepsy
Symposium 2002 in Kuopio, 15-16 March 2002. The meeting
was third in a series of epilepsy meetings that have been
organised jointly by the A.I.Virtanen Institute for Molecular
Sciences and the Department of Neuroscience and Neurology,
University of Kuopio. The objective of the meetings is to
present up-to-date knowledge of selected topics related
to epilepsy so that both experimental and clinical data
are presented. We brought together 250 people working on
different fields of epileptology to facilitate the exchange
of information and ideas, and to update understanding of
basic mechanisms, diagnostics and treatment of epilepsy.
President of ILAE, Giuliano Avanzini, was one of the 11
distinguished foreign lecturers who participated into the
symposium.
- Second educational meeting was held in Helsinki, 22 November
2002. The purpose of the meeting was to discuss topics related
to "Epilepsy and reproduction." Lectures dealt
with epilepsy and fertility, contraception, pregnancy and
outcome of children born to mothers with epilepsy. The meeting
served also as a launch for Finland's participation in EURAP
(European registry of antiepileptic drugs and pregnancy).
There were altogether 80 participants.
- Third meeting was held in Tampere 14 March 2003 together
with the 10th Anniversary of the Finnish Epilepsy Association.
The meeting gave an overview of epilepsy and the immune
system. The topics especially discussed were cytokines and
seizures, autoantibodies and epilepsy, and the role of immunomodulatory
treatment options. There were 100 participants.
Summary of activities in relation
to Global Campaign in 2002 and 2003
- The chapter has focused to increase professional awareness
of epilepsy as a treatable disorder. All our educational
meetings are part of the global campaign and in major meetings
we also arrange press conferences to increase public awareness.
Members of the chapter participate in the national effort
to create guidelines for the treatment of epilepsy in Finland.
- The chapter has also been an active participant in the
discussion of reimbursement policies of new antiepileptic
drugs in Finland. The goal is to increase the equal availability
of the new drugs for epilepsy patients regardless of their
economic situation.
Future plans
- Finnish Epilepsy Society tries to enhance both the adequate
clinical follow-up of women with epilepsy during their pregnancy
and EURAP in the effort for prospective assessment of pregnancy
outcome after prenatal exposure to antiepileptic drugs.
- In autumn 2003 the educational meeting will focus on the
use of EEG in the diagnostic work-up of epilepsies.
Summary Statement
The Finnish chapter now has 169 members (medical doctors
or researchers in epileptology). Finland has been very active
in epilepsy research and during 2002, Helsinki, our capital,
was chosen to be the site for the 7th European Congress on
Epileptology in 2006. We will work very hard to fulfill the
expectations of a high-quality scientific meeting.
|
French
Chapter of the ILAE (FLAE)
Simone Garrel, President
174 chemin de la Faurie
38410 Vaulnaveys le Haut
FRANCE
Phone: +04 76 59 24 49
Email:
Pierre Genton, Vice President
Centre Saint Paul 300, Bd Sainte Marguerite 13009 Marseille
FRANCE
Phone: +04 91 17 07 50
Fax: +04 91 75 96 69
Email:
Pierre Thomas, Secretary General
Service de Neurologie Consultation d'Epileptologie Hôpital
Pasteur, Pavillon D 30, Voie Romaine, BP 69 06002 Nice Cedex
1
FRANCE
Phone: +04 93 81 93 77
Fax: +04 93 81 93 77
Email:
Dominique Broglin, Treasury
Centre Saint Paul/Hôpital H. Gastaut 300, Bd Sainte
Marguerite
13009 Marseille
FRANCE
Phone: +04 91 17 07 50
Fax: +04 91 17 07 91
Email:
Michel Baulac, International Delegate
University of Paris VI
Hopital de la Pitie-Salpetriere
47 Bd de l'hôpital
75013 Paris
FRANCE
Phone: +33 1 42 16 18 11, mobile: 33 (0)6 07 68 59 85 Fax:
+33 1 44 24 52 47
Email:
The term of the present Executive Committee will end in December
2003
Publications
The quarterly publication of the LFCE, the journal Epilepsies,
is increasing its audience, both in France and among French-speaking
countries. A new edition of the "Guide des Etablissements
pour épileptiques" (Guide of Epilepsy Centres)
was issued.
Meetings
The "Journees Françaises de l'Epilepsie"
(French Epilepsy Days) constitute the yearly congress of the
FLAE. The site for 2001 was Tours, followed by Montpellier
in 2002, to be followed by Lille in 2003 and Aix-en-Provence
in 2004. This meeting, which gathers around 600 participants,
includes in particular:
- a "Jean Bancaud" day, devoted to the presentation
and discussion of clinical cases with EEG and video documentation;
- a special course for and by nurses and EEG technicians
Summary of activities in 2002 and 2003
Website
The FLAE keeps and professionally updates its site at http://www.epilepsies-lfce.fr
Education and teaching activities
The FLAE continues to promote an interuniversity teaching
course (Diplôme Inter-Universitaire d'Epileptologie).
The next objectives are its harmonization with other European
diplomas and its coordination with similar diplomas organised
in France in neuropediatry and neurophysiology.
Grants and International Henri Gastaut Prize
In order to promote research in epileptology, the FLAE has
developed, in partnership with pharmaceutical companies, a
policy of grants. In 2001, 2002, and 2003, up to six recipients
were awarded each year.
In 2001, the FLAE decided to create, in partnership with
Sanofi-Synthelabo, an international prize for major achievements
in epileptology, the International Henri Gastaut Prize, which
is now a well established international event. The 2003 winner
is Professor Yukio Fukuyama.
Summary of activities in relation to Global Campaign
in 2002 and 2003
After the success of the first National Epilepsy Day (Journée
Nationale de l'Epilepsie) on 18 November 2000, the second
edition was organised on 15-16 November 2002 and reached the
same level of interest and participation across the main cities
of France. Besides the FLAE, several organisations (AISPACE,
ARPEIJE), the French Bureau of Epilepsy and the French Foundation
for Research in Epilepsy are involved.
Future plans
- Among its plans, the FLAE envisions: a stronger involvement
in research, through its scientific committee chaired by
Perrine Plouin, and a revision of its statutes and regulations
- The 2005 IEC, planned in Paris, now represents our major
objective and we have started its preparation
Summary Statement
The near future will reinforce these various activities,
using modern tools of communication. New directions have also
been recently set: the development of international collaborations,
within Europe and the French-speaking world to begin with,
and also the establishment of closer relationships with private
neurologists, who actually care for a large majority of patients
with epilepsy in France. The organisation of the 2005 IEC,
currently planned in Paris, will be the opportunity to reinforce
our global commitment.
|
Georgian
Society Against Epilepsy
Geladze Tina, President
P. Saradgishivili Institute of Neurology
Epilepsy Research Center
Gudamakar 2
380092 Tbilisi
GEORGIA
Phone: +995 88 32 61 84 61
Fax: +995 88 32 00 10 27
Email:
Toidze Otar, Vice President
Nana Tatishvilli, Secretary General
Tamarshvili 5
Tbsili
GEORGIA
Phone: +995 99 50 83 08
Fax: +995 32 22 78 08
Email:
End of the term is 2004
Publications
- Epilepsy in primary health care; women, epilepsy, and
reproduction
- Epilepsy and psychosocial problems
- Neonatal neurology including chapter on neonatal seizures-etiology,
clinical, EEG manifestation, treatment and outcome
Meetings
- Conference on "Disability in cerebral palsy and
epilepsy"
- Conference of pediatric neurology and pediatric epilepsy
with participation of EPNS
- Training for pediatric neurologists and neonatologists
of Tbilisi on neonatal seizures and paroxysmal disorders
of infancy
- Training for child neurologists of Georgia in paroxysmal
disorders of childhood
- Training for GP of west Georgia in paroxysmal disorders
of childhood
- Training for neonatologists of west Georgia on neonatal
neurology including topic of neonatal seizures
- Teaching course with participation of EPNS for pediatric
neurologists of Georgia including one-day course in pediatric
epileptology
- Training for neonatologists and pediatricians on neonatal
seizures
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Educational program and training material (leaflets, brochures)
were elaborated and published for patients, caregivers,
policymakers, teachers, school psychologists three-day training
and seminars for the same audience
- one-hour monthly radio broadcasts for patients and their
families about epilepsy
Future plans
- Regional (Caucasian) epilepsy workshop for MDs; 150 participants
expected; duration 2-3 days
Summary Statement
In spite of a very difficult political and economic situation,
the Georgian Society Against Epilepsy tries to improve epilepsy
care throughout all Georgia, and increase public and patient
education on topics of epilepsy.
|
German
League Against Epilepsy
G. GroB-Selbeck, President
Krankenhaus Gerresheim
Kinderneurologisches Zentrum
Gräulinger Str. 120
40625 Düsseldorf
GERMANY
Phone: +49 21 12 80 03 555
Fax: +49 21 12 80 09 60
Email:
J. Zentner, Vice President
Neurochirurgische Univ.- Klinik
Breisacher Str. 64
79106 Freiburg
GERMANY
Phone: +49 76 12 70 50 08
Fax: +49 76 12 70 50 06
Email:
U. Stephani, Secretary General
Klinik für Neuropädiatrie D. Univ. Kiel
Schwanenweg 20
24105 Kiel
GERMANY
Phone: +49 43 15 97 17 61
Fax: +49 43 15 97 17 69
Email:
Eva Bettina Schmitz, Secretariat
Medizinische Fakultat, Virchow-Klinikum,
Humboldt-Universitat
Neurologische Klinik und Poliklinik
Augustenburger Platz 1
13353 Berlin
GERMANY
Phone: +49 30 45 06 00 22
Fax: +49 30 45 06 09 01
Email:
U. Runge, 1st Secretary
Neurologische Universitatsklinik
Epilepsiezentrum - Ellernholzstr. 1-2
D-17487 Greifswald
GERMANY
Phone: +49 38 34 86 68 27
Fax: +49 38 34 86 68 75
Email:
D. Dennig, Treasurer
Seelbergstr. 11
70372 Stuttgart
GERMANY
Phone: +49 71 11 56 18 97
Fax: +49 71 11 56 19 98
Email:
|
Greek
League Against Epilepsy
Athanasios Covanis, President
5 Riga Ferreou
Kalamaki - Athens 17455
GREECE
Phone: +30 210 77 51 637
Fax: +30 210 77 05 785
Email:
Aristides Kazis, Vice President
32 Agia Sophia
Thessaloniki 54623
GREECE
Ioannis Mayromatis, Secretary General
21 Nikis Avenue
Thessaloniki 54623
GREECE
Nikos Triantaphylou, Treasurer
35 Megalou Alexandrou
Kifisia-Athens 14563
GREECE
History
The Greek League Against Epilepsy (Panellinios Epistimonikos
Syllogos Kata Tis Epilipsias) was established 26 May 1993
by a group of 31 neurologists interested in epilepsy. Since
then the activities of our league are best expressed during
the Annual Hellenic Neurology Conference. The two minor spring
and autumn meetings and teaching courses are also under the
auspices of the Greek Neurology Society.
Publications
- In collaboration with the Greek Association against Epilepsy:
Living with epilepsy, series A. The Alexis story for the
very young. A guide for Children, Adolescents, Adults and
parents. Hand-out leaflets giving information about different
type of seizures and their management.
- Papers produced in the different meetings are published
in the official Journal of the Greek Neurology League
Meetings
Only within the context of the neurology meetings.
Summary of activities in relation to Global Campaign
in 2002 and 2003
Last Global Campaign activity took place during the 7th Mediterranean
Epilepsy Conference, 22-25 November, Athens.
Future plans
- To improve collaboration among Greek epileptologists
in epidemiology and clinical trials
- To upgrade epilepsy surgery in Greece
- To hold a future European Epilepsy Conference
Summary Statement
The Greek League Against Epilepsy has a lot to do in order
to become a self-supported and independently working society.
Its present function relies on specific individual efforts.
|
Guatemalan
League Against Epilepsy
Henry B. Stokes, President
6 Calle 2-48, Zona 1
GUATEMALA
Phone: +502 25 14 008 /+502 20 67
Fax: +502 29 25 840
Email:
Jose M. Perez Cordova, Secretariat
|
Honduras
League Against Epilepsy
Ricardo Madrid, President
Hospital Escuela
Dpto. Patalogia
Tegucigalpa
HONDURAS
Phone: +504 98 21 565
Fax: +504 23 94 964
Email:
Marco Tulio Medina, Vice President
Email:
Heike Hesse, Secretariat
Col. El Prado
5 Calle No 860
Tegicugalpa
HONDURAS
Phone: +504 97 04 162
Fax: +504 22 72 743
Email:
History
The Society was formed on August 1994, as a response to the
pressing demand of adequate neurological care for the Honduran
epileptic patient. It consists of a multidisciplinary group
of specialists in the neurosciences, with the primary objective
of standardizing diagnosis, treatment and sanitary policies
for the epileptic patient.
Publications
- The Epilepsies in Central America (Editors: M.T. Medina
et al.)
- Honduran Journal of Neurosciences (co-published with the
Honduran chapter of the World Federation of Neurology)
- Actualidades en las Epilepsias (Ed: M.T. Medina)
- Several papers in the Honduran Journal of Medicine, J.
of Neurosurgery, others
Meetings
- Trimonthly meetings co-organized with the Neurology Residency
Training Prog.
- Continual Education Meetings in rural Honduras (La Esperanza,
Sta. Bárbar)
- Co-organizers of the "Salvador Moncada First National
Meeting of Science"
- Co-organizers of Regional Central American Epilepsy Meetings
(Aug. 2002, Aug. 2003)
Summary of activities in 2002
and 2003
- National Survey of Epilepsy (in approx. 100,000 persons)
Prevalence 6 x1000
- Cohort Study of Epilepsy in Rural Honduras (Salamá,
Olancho)
- Donation of EEG equipment to National Public Hospital
in Honduras
- Promoting training in Epilepsy as a subspecialty (R. Durón,
UCLA)
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Inter-institutional meetings to ensure quality control
of antiepileptic drugs
- Organizing educational meetings with patients
- Co-organization of Genetic Consortium with UCLA, study
of idiopathic epilepsies
- Co-organization of the WFN Task Force against Neurocysticercosis
- Help promote the formation of new ILAE chapters in Central
America
- Promote the training of 100 general physicians in the
diagnosis and treatment of the epilepsies, in association
with the National School of Medicine and the Honduran College
of Physicians
- Promote anthropological studies of the epilepsies in Honduran
ethnic groups
Future plans
- Continue National Surveys in Rural and Urban Honduras,
to determine epidemiological profile of the epilepsies in
our country
- Continued Medical Education in the Epilepsies with general
physicians and neurology residents
- Medical Brigades to rural Honduras
- Promote collaborative working groups in Central America
- Determine epidemiological profile of the epilepsies in
our country
- Implement Epilepsy Surgery
- Control the first cause of epilepsy in the country: Neurocysticercosis
Summary Statement
We continue the search to improve the quality of life for
the Honduran patient with Epilepsy.
|
Hungarian
Epilepsy League
Peter Rajna, President
Semmelweis University - Faculty General
Medicine
Dept. Psychiatry and Psychotherapy
Balassa U.6.
H - 1083 Budapest, VIII
HUNGARY
Phone: +36 12 10 03 30
Fax: +36 12 10 03 36
Email:
Bela Clemens, Secretariat
Bartok B. 43
H-4031 Debrecen
HUNGARY
Phone: +36 52 51 17 77
Fax: +36 52 51 17 29
Email:
Magda Neuwirth, Treasurer
Ulka U. 57
H-1143 Budapest
HUNGARY
Phone: +36 13 43 16 24
Fax: +36 13 41 41 75
Email:
Péter Halász, Past President
Email:
Publications
- HEL is owner of 11% of the periodical Clinical Neuroscience
/ Ideggyógyászati Szemle since 1991 (which
was included in the international registration on 2002)
Meetings
2002
- 3rd National Epilepsy Day 14 February 2002
- National Congress of HEL
- 1st Epilepsy Academy (sponsored by Janssen-Cilag)
- 1st Good Epilepsy Practice Course (sponsored by Glaxo)
- 19th Working Conference of HEL
2003
- 4th National Epilepsy Day February 14, 2002
- HEL Section of National Congress of Hungarian EEG Association
- 2nd Epilepsy Academy (yearly course sponsored by Janssen-Cilag)
- 2nd Good Epilepsy Practice (yearly course sponsored by
Glaxo) (planned)
Summary of activities in 2002
and 2003
- Based on detailed yearly working plans starting with efficient
work in the Commissions of HEL
- Modification of the constitution of HEL (introduction
of the president elect _ president _ past president system)
- Construction of a two-level qualification system of both
institutional and personal accreditation in epilepsy patient
care
- Implication of the above mentioned institutional accreditation
into the governmental licensing system concerning the prescription
of 3rd generation AEDs
- Completing and distribution to users the National Epilepsy
Database System (EPIMED 3.0) suitable for doing national
multisite research and increasing the level of outpatient
care as well
- Organisation of new regular education courses in the field
of epilepsy (see above at meetings)
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Epilepsy Day 14 February: 2002, 2003
- Patient Conferences 2002, 2003
- Supporting an edition of EPILAP, the quarterly of the
National Organisation of People with Epilepsy
Future plans
- 20th (Jubilee) Working Conference of HEL (2-4 October)
- Regular election of Chairman and Board of HEL
- Edition of the 2nd thematic issue on Epilepsy (2004 January)
for the Clinical Neuroscience / Ideggyógyászati
Szemle
Summary Statement
During the last two years the Hungarian Epilepsy League continued
systematic work for the development and controlling of the
national level of epileptology. Activities on professional
accreditation and on education were successful. Further hard
work is necessary to increase activity in clinical research
and to help in the organisation of a more efficient national
network of the patient organisation.
|
Indian
Epilepsy Society
Bhim Sen Singhal, President
1-B, Vaibhav
80, Bhulabhai Road
400 026 Maharashtra Mumbai
INDIA
Phone: +91 11 36 30 639
Email:
V.S. Saxena, Vice President
Sannidhi
K-10/10 DLF Qutub Enclave II
122 002 Gurgaon
Haryana
INDIA
Phone: +91 11 63 50 035
Fax: +91 11 33 58 893
Email:
Satish Jain, Secretary General
Indian Epilepsy Center
A - 258 Defence Colony
110 024 New Delhi
INDIA
Phone: +91 11 46 31 874 / +91 11 46 48
Fax: +91 11 46 20 158
Email:
Man Mohan Mehndiratta, Treasurer
G.B. Pant Hospital
Department of Neurology
110 002 New Delhi
INDIA
Phone: +91 11 68 86 640
Email:
G. Arundas, Past President
Mercury Nursing Home
36, Pantheon Road
600 008 Egmore - Tamil Nadu
Madras
INDIA
Phone: +91 44 82 50 425
Fax: +91 44 82 56 336
Email:
Chandra Mohan Sharma, Council Member
Civil Lines
150, Hari Marg
302 006 Rajasthan Jaipur
INDIA
Phone: +91 11 38 26 84
Email:
V.P. Singh, Council Member
Vimhans
B-I/33 A Hauz Khas
110 016 New Delhi
INDIA
Tel : +91 11 69 64 790
Fax : +91 11 68 62 663
Email :
Arun Kumar Sood, Council Member
13-8 Fm Medical Enclave
124 001 Rohtak
Haryana
INDIA
Phone: +91 11 26 24 16 65
B.C. Bansal
90, Sector 15A
201 301 Noida
INDIA
Phone: +91 11 91 45 13 470
Fax: +91 11 91 45 11 630
Email:
|
Indonesian
Society Against Epilepsy
Achdiat Agoes, President
I. Blatt
Chaim Sheba Medical Center
Email:
U.M. Kramer
Tel-Aviv Sourasky Medical Center
Email:
E. Shahar
Email:
Activities
CME 2001
International teaching course on epilepsy, with the help of
commission on Asian-Oceanian affairs of ILAE, led by M. Seino
(Japan), C.T. Tan (Malaysia), and Lim Shih Hui (Singapore)
with about 250 participants from all over Indonesia.
11-13 December 2003
Follow up EEG training course, also with the help of Asian-Oceania
Commission of ILAE
Local CME on Management of Epilepsy, on the regional level,
in Jakarta, Bandung, Semarang, Yokjakarta and Surabaya, Medan,
Makasar, Manado, mostly for general practitioners. We are
also able to use video presentation and interactive discussion
with interested GPs.
In Jakarta periodic radio talk-show (Lina Surtidewi), interactive
discussion with epileptic patients and family, with the sponsorship
of Pfizer-Indonesia
Strategic Program
Meeting with the Ministry of Health to discuss the availability
of AED in the regional health centers (Pusat Kesehatan Masyarakat).
Until now AED has not always been available at those centers.
Also for reporting purposes, it was difficult for us because
epilepsy was included in psychiatric diseases, and reported
accordingly. On the other hand in Indonesia psychiatrists
are not trained to be epileptologists.
We are trying to convince the Ministry than epilepsy is a
neurological disease.
Although there are no valid statistics, the treatment gap
is very high, perhaps 90% due to poverty and ignorance. At
present per capita yearly income of an Indonesian is US $600.
In Semarang, Middle Java, Zainal Mutaquin, first with the
help from his Japanese colleques, has pioneered epilepsy surgery
(mostly for hypocampal sclerosis) with encouraging results.
He has done 40 cases.
Conclusion
- Some progress in CME in management of epilepsy
- Still not able to provide reasonable cost ADE for most
of the population in need
- Pioneering epilepsy surgery done
|
Iraq
Society Against Epilepsy
Sarmed A. Al-Fahad, President
P.O. Box 61084 - P.O. Code 12114
Bagdad
IRAQ
Phone: +964 17 76 44 71
Email:
Abdul Mutaleb Al-Sheikly, Secretary General
Kadhimiyah University Hospital
P.O. Box 70041Khadimyiah
Bagdad
IRAQ
Phone: +9641 52 22 111
Email:
|
Irish
Epilepsy League
Joe McMenamin, Chair
Our Lady's Hospital for Sick Children
Crumlin
Dublin 12
IRELAND
Phone: +353 14 05 64 11
Fax: +353 14 05 68 87
Email:
/
Norman Delanty, Vice Chair
Brian Sweeney, Secretary
Bryan Lynch, Treasurer
The Childrens Hospital
Temple Street
Dublin
IRELAND
Phone: +353 18 78 43 79
Fax: +353 18 78 44 44
Email:
Meetings
The Irish Epilepsy League (IEL) did not run its own meetings
in 2002 and 2003 but was heavily involved in the epilepsy
sections of the meetings of the Irish Institute of Clinical
Neurosciences (IICN). These included the "Diaspora meetings"
in which young Irish neuromedics based in the USA, the UK,
Europe and other countries present their work to their Irish
peers. One of the purposes of these meetings is to provide
a platform for these neurologists/neurophysiologists to consider
their options in terms of returning to Ireland. A number of
excellent young Irish epileptologists who have presented to
the Diaspora meetings have returned to posts in Ireland in
the past few years.The IEL used the IICN meeting early in
2003 to present its Kirker prize for epileptology. This annual
award was created by the IEL to honour its founder member
John G. Kirker (known as Joe to his medical colleagues in
Ireland). The prize was awarded to a team led by Geraldine
Boylan, now based at Cork University Hospital, from Guy's
King's St Thomas' School of Medicine, London, UK and included
J.M. Rennie, G. Chorley, R.M. Pressler, G.F. Fox, K. Farrer,
M. Morton, and C.D. Binnie.
The wining paper was entitled: "Second line anticonvulsant
treatment of neonatal seizures: A video-EEG monitoring study"
and it has been accepted for publication in Neurology.
The other major happening in Ireland was the publication
of the Comhairle na nOispideal Report on Neurology and Neurophysiology
by the government expert group. The report relied heavily
on the Standards of Care documents, which were drawn up by
the Elan Neurology Board on which several members of the IEL
sat. The report recommended many changes with which the IEL
would agree although it had reservations on some of its proposals
for paediatric neurology and for neurophysiology.
|
Israeli
League Against Epilepsy
Miri Neufeld, President
Tel-Aviv Sourasky Medical Center, Tel-Aviv
University
EEG Lab. and Epilepsy Unit - Department of
Neurology
64239 Tel-Aviv
ISRAEL
Phone: +972 36 97 34 18
Fax: +972 36 97 39 02
Email:
Meir Bialer, Secretary General
The Hebrew University of Jerusalem
Faculty of Medicine, School of Pharmacy
P.O. Box 12065
91120 Ein Karem - Jerusalem
ISRAEL
Phone: +972 26 75 86 10
Fax: +972 26 75 72 46
Email:
Board Members:
I. Blatt, U. Kramer, E. Shahar
The above officers were elected on December 2001, for a three-year
term starting January 2002.
Meetings
- October 2002: The Annual Meeting of the Israeli League
Against Epilepsy was held in the Sheraton City Tower Hotel
in Ramat-Gan. Sander from Queen Square London gave the main
lecture on SUDEP.
- March 2002: Regional meeting with the Israeli lay organisation
of epilepsy
- April 2003: A conjoint meeting was held in Tel-Aviv Sourasky
Medical Center by the Israeli League Against Epilepsy and
the Israeli Neuropediatric Association. Guest lecturer was
Baram from Irvine University, California on the association
between temporal lobe epilepsy and febrile seizures.
- Semiannual meetings of the "Seizure Club" were
initiated by the League for presentation of difficult and
interesting cases. They are held in D-MALL in Ramat-Gan
and are attended by all pediatric and adult epileptologists.
Summary of activities in 2002
and 2003
- Participation in the EUREPA registry of AED in women
with epilepsy
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Lectures, seminars and meetings for patients with epilepsy
on treatment of epilepsy, and women and epilepsy
- Press releases, talks on TV and radio, articles in local
newspapers
- Diary of epileptic seizures
- In progress: creation of an Internet site for exchanging
and disseminating information among epileptologists, neurologists
and patients with epilepsy
|
Italian
League Against Epilepsy
Emilio Perucca, President
Unita Farmacolgia Clinica
Piazza Botta 10
27100 Pavia
ITALY
Phone: +39 03 82 50 63 53
Fax: +39 03 82 50 64 19
Email:
Paolo Tinuper, Secretary
Istituto di Clinica Neurologica
Via Ugo Foscolo 7
40123 Bologna
ITALY
Phone: +39 05 15 85 158
Fax: +39 05 16 44 21 65
Email:
Federico Vigevano, Past President
Ospedale Pediatrico Bambino Gesu'
Divisione Neurologia
Piazza S. Onofrio 4
00165 Roma
ITALY
Phone: +39 06 68 59 22 62
Fax: +39 06 68 59 24 63
Email:
Paola Pasini, Administrative Secretary
Department of Neurological Sciences
University of Bologna
Via U. Foscolo 7- 40123
Bologna
ITALY
Email:
Publications
- Bollettino della Lega Italiana contro l'Epilessia
Meetings
- Claudio Munari Neurosurgery Workshop, Roma, 23 March
2002
- Chapter's National Congress, Bologna, 2-5 June 2002
- Video EEG Course, Milano, 1-4 April 2003
- Claudio Munari Neurosurgery Workshop, Milano, 5 April
2003
- Chapter's National Congress, Cagliari, 28-31 May 2003
Summary of activities in 2002
and 2003
- In addition to organisation of congresses, scientific
meetings and courses, the Italian Chapter is involved in
various activities aimed at promoting epileptology at the
national and international level. Most of the activities
are conducted through its 8 Commissions (Commission for
the Website, Videoteque Commission, Commission on Genetics,
Commission for Accreditation of Epilepsy Centres, Commission
for Continuous Medical Education, Commission on Guidelines,
Commission for Relations with Industry, Commission for Relations
with Patient's Association) and 8 Working Groups (Epilepsy
and Pregnancy, Neuropsychology, Quality of Life, Rasmussen's
Encephalitis, Basic Sciences, EEG Atlas, Promotion of Epilepsy
Services, Practice Codes), many of which are in charge of
conducting research projects, surveys, liaison with health
authorities, and preparation of diagnostic and management
guidelines. Other activities run in conjunction with the
Regional Sections, which operate in the various administrative
areas of Italy under the leadership of Regional Coordinators.
- More information on the chapter's activities can be found
in its Website (www.lice.it
).
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Organisation of Epilepsy Day on the first Sunday of May
2002 and 2003
- The first Sunday of each May has been declared Epilepsy
Day by the Italian Ministry of Health and the chapter utilizes
this opportunity to promote, in conjunction with the Patients'
Association (AICE), a national campaign through the media
as well as various initiatives in all major cities aimed
at promoting awareness about epilepsy in the general public.
Future plans
- Foster research into the causes and treatment of epilepsy
- Collect and process national and regional statistics and
information
- Promote and support epilepsy services in the country
- Establish and maintain relations with the national and
regional health authorities to promote legislation and regulations
in favour of people with epilepsy
- Prepare documents and guidelines aimed at improving the
care of people with epilepsy
- Organise the Chapter's annual congress
- Organise courses, meetings, and conferences on the medical
and social aspects of epilepsy
- Receive contributions and donations to be used for its
statutory aims
- Strengthen relations with the International Leagues against
Epilepsy and other national and international organisations
involved in the treatment and care of people with epilepsy
Summary Statement
The Italian League against Epilepsy has about 1,000 members,
most of whom participate actively in the chapter. The chapter
represents the most important national organisation involved
in promoting improved standards of care for people with epilepsy,
through a number of activities which are partly run in collaboration
with the Patients' Association. Through many of its members,
the Italian chapter also contributes to an important extent
to the organisation and to the activities of ILAE. |
Jamaican
Chapter of ILAE
Sheik Muhamad Amza Ali, President
Kingston Public Hospital
Oxford Medical Centre
22h Old Hope Road
Kingston 5
JAMAICA
Phone: +876 92 61 525-6
Fax: +876 90 65 339
Email:
Charles Thesiger, Secretary General
University of the West Indies
Hospital Ring Road, Mona
Kingston 7
JAMAICA
Phone: +876 92 61 525-6
Fax: +876 96 02 257
Email:
|
Japan
Epilepsy Society
Kazuichi Yagi, President
c/o National Epilepsy Center
Shizuoka Higashi Hospital
886 Urushiyama
420 Shizuoka
JAPAN
Phone: +81 54 24 89 077
Fax: +81 54 24 89 077
Email:
Tadahiro Mihara, Secretary General
National Epilepsy Center
Shizuoka Medical Institute of Neurological
Disorders
886 Urushiyama
420-8688 Shizuoka
JAPAN
Phone: +81 54 24 89 077
Fax: +81 54 24 89 077
Email:
History
From 1953 to 1964, the Ministry of Education Joint Research
Group was organised as the first joint research on epilepsy
in Japan. Following this activity, the First Japan Epilepsy
Research Meeting was held in 1967 and the Japan Epilepsy Society
was founded in 1979. The 37th Congress of the Society is scheduled
this year.
Publications
- Journal of the Japan Epilepsy Society, three issues per
year; Editor-in-chief: Takuya Kojima (2001-2003)
Meetings
- The 36th Annual Congress of the Japan Epilepsy Society,
Karuizawa; 11-14 September 2002 President: Toshio Yamauchi
- The 37th Congress of the Japan Epilepsy Society, Sendai;
30-31 October 2003 President: Kazuie Iinuma
Summary of activities in 2002 and 2003
- Lobbying for amendment of the Road Traffic Law
- The 3rd and 4th Selection of Accredited Doctors (Clinical
Specialist)
Summary of activities in relation to Global Campaign
in 2002 and 2003
Global Campaign Meeting (4th Asian and Oceanian Epilepsy
Congress organised in collaboration with The 36th Annual Congress
of the Japan Epilepsy Society, 14 September 2002, Nagano,
Japan)
Future plans
- The 37th Congress of the Japan Epilepsy Society, Sendai,
30-31 October 2003 President: Kazuie Iinuma
- Workshop on Road Traffic Law, Sendai, 31 October 2003
|
Jordan
Chapter of Epilepsy
Abdelkarim A. Al-Qudah, President
Jordan University
Faculty of Medicine Amman Jordan
P.O. Box 13407
Amman
JORDAN
Fax: +962 53 53 388
Email:
Ashraf Al Kurdi, Past President
Jordan Medical Council
P.O. Box 5025
11183 Amman
JORDAN
Phone: +962 66 44 544
Fax: +962 46 15 500
Email:
|
Kenya
Society For Epilepsy
Renato Ruberti, President
Nairobi Hospital
Research Foundation
P.O. Box 20413
Nairobi
KENYA
Phone: +254 27 22 487
Fax: +254 27 25 776
Email:
Paul G. Kioy, Secretary General
University of Nairobi
Department of Neurology
P.O. Box 30197
KENYA
Phone: +254 23 34 186
Fax: +254 22 46 050
Email:
/
|
Korean
Epilepsy Society
Yong Saung Hwang, President
Children's Hospital, SNUH
Seoul National University, College of Medicine
28 Yeonkeon-dong, Chongro-gu
110-460 Seoul
SOUTH KOREA
Phone: +82 27 60 36 29/3570
Fax: +82 27 43 34 55
Email:
Sang Kun Lee, Secretary General
Seoul National University Hospital
Department of Neurology
28 Yeungon-dong
110-744 Chongno-Ku Seoul
SOUTH KOREA
Phone: +82 27 60 29 23
Fax: +82 23 67 27 553
Email:
End of Term: 31 December 2004
Publications
- Newsletter
- Journal of Korean Epilepsy Society
Meetings
- The 7th Annual Meeting of Korean Epilepsy Society: 4-5
July 2002
- The 8th Annual Meeting of Korean Epilepsy Society: 13-14
June 2003
|
Kyrgyz
League Against Epilepsy
Valery Solozhenkin, Chairman
Kyrgyz State Medical Academy
Department of Psychiatry
92, Akhunbaev Street
720020 Bishkek
KYRGISTAN
Phone: +996 31 25 10 363
Fax: +996 31 25 10 363
Email:
Albina Pankratova, Secretary
Kyrgyz State Medical Academy
Department of Psychiatry, Medical Psychology
and Psychotherapy
92, Achunbaev Street
720020 Bishek
KYRGISTAN
Phone: +996 31 25 10 363
+996 31 24 70 949
Fax: +996 31 25 10 363
Email:
|
Latvian
Chapter of ILAE
Eglis Vitols, President
City Hospital No. 7
Dept of Neurology
Hipokrata Str. 2
LV - 1038 Riga
LATVIA
Phone: +371 25 36 540
Fax: +371 25 39 524
Email:
Lolita Budnika, Secretary
Phone: +371 7536857
End of the term for Executive Council _ November 2004
Publications
- E.Vitols. "What everyone must know about epilepsy"
Veseliba, 2001, Nr.7, 32-33 (in Latvian)
- E.Vitols, "Epilepsy and Pregnancy"; Doctus,
2002, Nr.7, 38-41 (in Latvian)
- E.Vitols. "Epileptic syndromes of neonatal and infantile
period"; Jums, kolegi, 2002, Nr.11, 28-31 (in Latvian)
- E.Vitols, G. Enina. "Recommendations for rational
pharmacotherapy in epilepsy"; Latvijas Arsts, 2002,
Nr.6, 34-36 (in Latvian)
- Nine short publications in regional press dedicated to
various problems of epilepsy
- Two articles submitted for publication in local medical
press in 2003
Meetings
- In 2002 three meetings of the Latvian Chapter of ILAE
were carried out; two meetings were organised together with
the Epilepsy Patient's Association.
- In 2003 one meeting of the Chapter and one meeting of
Epilepsy Patient's Association were carried out.
Summary of activities in 2002 and 2003
- During 2002 and 2003 16 seminars and meetings were carried
out with family doctors, neurologists and paediatrists.
- In 2003 3-days epilepsy course was organised for 18 doctors.
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Explanation of epilepsy problems during above mentioned
activities
Future plans
- Continuation of public activities and increasing efforts
for solving problems with AED
|
Lebanese
League Against Epilepsy
Naji Riachi, Secretary General
Rizk Hospital
P.O. Box 11 - 3288
Beirut
LEBANON
Phone: +961 32 29 324
Fax: +961 12 00 816
Email:
Ali Fawaz
Airport B.v.d.
P.O. Box 110/24
Beirut
LEBANON
Fax: +961 15 41 313
|
Society
of Epileptologists of Lithuania
Milda Endziniene, President
Kaunas University of Medicine
Clinic of Neurology
Mickeviciaus 9
LT - 3000 Kaunas
LITHUANIA
Phone: +370 37 32 68 11
Fax: +370 37 32 69 22
Email:
Jurate Grigoniene, Secretary
Hospital of Kaunas University of Medicine
Child Neurology Unit
Eiveniu 2
3007 Kaunas
LITHUANIA
Phone: +370 37 32 69 22
Fax: +370 37 32 68 86
Email:
Arunas Zobakas, Treasurer
Hospital of Kaunas University of Medicine
Clinic of Neurosurgery
Eivieniu 2
Kaunas 3007
LITHUANIA
Phone: +370 37 32 65 19
Email:
The end of the term is 2005.
Publications
- "Epilogas" issue 2 (bulletin of the Lithuanian
ILAE chapter)
- "Woman and Epilepsy" (review of current recommendations)
- "Epilepsy in childhood" (booklet for parents)
Meetings
- "Diagnosis and treatment of epilepsy: options and
pitfalls," February 2002, with participation of representatives
of European ILAE chapters
- "Epilepsija _ 2002" joint conference of the
Lithuanian Society of Epileptology (ILAE chapter) and the
Society of People with Epilepsy (IBE chapter) devoted to
the 10th anniversary of the latter organisation. June 2002,
2 days, with participation of representatives from British
ILAE and IBE chapters
- "The choice of epilepsy treatment in different target
populations" November 2002
- "Classification and treatment of epilepsy, the update"
February 2003, with participation of representatives of
European chapters.
Summary of activities in 2002
and 2003
- "Guidelines for the Management of Epilepsy in Lithuania"
prepared; confirmed by the government and published in 2002.
- Campaign "Woman and Epilepsy," small meetings
in different regions of Lithuania covering issues of women
with epilepsy
- Initiated the revision of the law concerning driving by
people with epilepsy (under preparation).
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Topics concerning living with epilepsy discussed during
the above mentioned meetings for professionals and lay people,
with invitation of mass media: comprehensive care, nursing,
needs of people with epilepsy, driving
- Initiation of self-help groups and the club of parents
of children with epilepsy
- Letter to the President, Government and the Parliament
by the participants of the conference "Epilepsija-2002"
concerning the funding of costs for epilepsy treatment in
Lithuania
- Regular interference with AED supplies and AED re-imbursement
legislation issues in Lithuania
Future plans
- Website for parents of children with epilepsy
- Development of epilepsy education program
- Further development of psychosocial help and surgery in
epileptology
Summary Statement
Issues of comprehensive management of epilepsy especially
concerning psychosocial rehabilitation, education and surgery
are the main targets for the future.
|
Macedonia
League Against Epilepsy
Radoslav Naumovski, President
Clinic of Neurology, Clinical Center Skopje,
Vodnjanska 17, 1000, Skopje
R. Macedonia
Phone: + 389 2 3147334
Fax: + 389 2 3136 557
Email:
Gordana Kiteva-Trencevska, Secretary
Clinic of Neurology, Clinical Center Skopje,
Vodnjanska 17, 1000, Skopje
R. Macedonia
Phone: + 389 2 3074002
Fax: + 389 2 3136 557
Email:
Slobodanka Sazdova-Burneska, Treasurer
Clinic of Neurology, Clinical Center Skopje,
Vodnjanska 17, 1000, Skopje
R. Macedonia
Phone: + 389 2 3147 316
Fax: + 389 2 3136 557
Email:
Election of new officers is in March 2004.
Publications
- Official journal of the League Against Epilepsy of R.
Macedonia is "Epilepsia" in Macedonian language,
published quarterly and delivered free of charge to neurologists,
neuropsychiatrists, psychiatrists, pediatricians, psychologists,
neurophysiologists, general practitioners, residents, and
students interested in epileptology; and to medical and
national libraries interested people with epilepsy. In March
2003 numbers 13 and 14 were published, devoted to psychological
and psychiatric aspects of epilepsies, economic aspects
of ambulatory and hospital treatment of epilepsies, the
reasons for unsuccessful treatment of GIE, epilepsy and
muscle dystrophies, epileptic syndromes in childhood, and
the calendar of European and International Congresses and
Conferences. The IBE Web page was promoted in the previous
journal number in 2002; 2003 is the 7th year of existence
of the journal, focusing on diagnosis, treatment, and prognosis;
socioeconomic and psychobiologic aspects of epilepsies;
the history of understanding of epilepsy; and the quality
of life for people with epilepsy. Editor in chief is Radoslav
Naumovski.
Meetings
- Meetings of Macedonian Neurological Society with themes
dedicated to epilepsies
Summary of activities in 2002
and 2003
- Three-year project carried out with financial support
from the Ministry of Science was finished and should be
reported in September 2003 entitled "Psychiatric disturbances
and social aspects in people with epilepsy"
- joined EUREPA
- participated in EURAP
- attended Regional, European, and International epileptology
congresses, symposia, and courses for continuing education
Summary of activities in relation
to Global Campaign in 2002 and 2003
- participation in radio and TV popular programmes devoted
to epilepsies
- publication in newspapers and in professional journals
of articles from people with epilepsy and from professionals
devoted to epilepsy and driving, stigma and epilepsy, quality
of life and epilepsy
Future plans
- creating Web page of the Macedonian Chapter of the ILAE
- recruiting more members and more participants in educational
activities
- organising local and regional meetings devoted to epileptology
- organising international epileptology symposium during
the National Congress of Neurology
- attending Regional, European and International epileptology
courses, congresses and symposia
- planning to create national epilepsy registry
- motivating patients and their families to organise themselves
in Macedonian Chapter of the IBE
Summary Statement
Working enthusiastically despite lack of resources and hope
to be able to go on with our plan. |
Malaysian
Society of Neurosciences
Raymond Azman Ali, Chairman
Dept. of Medicine
Hospital Universiti Kebangsaan Malaysia
Jln. Yaakob Latif, Bandar Tun Razak
56000 Cheras, Kuala Lumpur
Malaysia
Phone: +60 39 17 02 105
Email:
Raihanah Abdul Khalid, Secretary
Dept. of Neurology
IKTAR, Hospital Kuala Lumpur, Jln. Pahang
50586 Kuala Lumpur
Malaysia
Phone: +60 32 69 05 400
Email:
Azmi Hj. Rashid, Treasurer
Damansara Specialist Hospital, 119, Jln. SS 20/10, Damansara
Utama,
47400 Petaling Jaya
Malaysia
Phone: +60 37 72 22 962 ext. 343
Email:
Term is February 2002 - February 2004
History
The Council was started as a Chapter of the existing Malaysian
Society of Neurosciences (MSN) in February 2002, as an affiliation
with the ILAE was initiated by the MSN a year prior. There
is at present the Malaysian Society of Epilepsy (MSE), formed
12 years ago, which had been bearing the responsibility of
coordinating activities both for the lay public as well as
for professionals in the field of epilepsy. (The MSE has been
affiliated with the IBE since 1998). This was felt to be an
unsatisfactory state of things, hence the setting up of the
Council.
The function of the Council is complementary to the MSE.
The Council will focus on professional issues related to epilepsy,
such as CME and training to medical as well as paramedical
allied staff, and act as advocate to the government when necessary.
Publications
- The Council is in the midst of preparing and editing
the 1st Malaysian Consensus Guideline on the Management
of Epilepsy, which hopefully will be finished and published
before the end of this year.
- A QOL study involving 364 respondents is being analysed
and is hoped to be ready for presentation in Lisbon this
year by the principal investigator, Raihanah Abd. Khalid.
Summary of activities in 2002
and 2003
- Members of the Council were active in the Annual Scientific
Meeting of the MSN in April 2002, held in Penang, Malaysia.
A workshop on EEG and videotelemetry was organised for neurotechnicians.
A Symposium on Epilepsy, with 4 speakers on the various
aspects of epilepsy was held. The speakers and topics were:
i. Raymond Azman Ali, Classification of Epilepsy
ii. Ben Selladurai, Epilepsy Surgery
iii. Raihanah Abdul Khalid, The Medical Therapy
of Epilepsy
iv. Andrew Pan, Nonpharmaceutical management
of Epilepsy
- Azmi Abd. Rashid gave a talk to the medical personnel
in Seremban, Negeri Sembilan, on "Approach in the Diagnosis
and Treatment of Seizures Disorders" on 22 June 2003
- Raymond Azman Ali gave a talk in Alor Star, Kedah on "The
Current Management of Epilepsy" on 22 August 2002
Summary of activities in relation
to Global Campaign in 2002 and 2003
- The MSE is actively pursuing this aspect and the Council
will assist in their activities.
Future plans
- We hope to start off next year with special emphasis on
schoolchildren, and hope to organise talks with trainee
teachers in training colleges and also school counselors
in established primary as well as secondary schools
- We hope to put together a special Epilepsy Package containing
relevant materials on epilepsy in children, including a
locally produced video, to be presented to these schools
- We also hope to go on a tour of the 14 different states
in Malaysia to hold Epilepsy Updates for the benefit of
the professional medical personnel in each region
|
Epilepsy
Society of Malta
Anthony Galea Debono, President
St Lukes Hospital
GMangia
Malta
Email:
Doriette Soler, Vice President
Dept of Clinical Pharmacology
University of Malta
Malta
Email:
Simon Attard Montalto, Vice President
St Lukes Hospital
GMangia
Malta
Email:
Janet Mifsud, Secretary
Dept of Clinical Pharmacology
University of Malta
Malta
Email:
Josanne Aquilina, Treasurer
St Lukes Hospital
GMangia
Malta
Email:
Publications
- Mifsud J, Ellul-Micallef R, Portelli J, Millership J.
A sensitive gas chromatographic/ mass spectrometric method
for the resolution and quantification of ethosuximide enantiomers
in biological fluids. Journal of Chromatography B 772 (2002)
307-315
- Mifsud J, Dimech M, Debattista A, Cachia G. Caritas (Malta)
Epilepsy Association: On The Side Of People In Need. Abstract
in Proceedings. 8th Epilepsy and Society meeting, Spain,
May 2002
- Mifsud J, Gafa M, Micallef M. Immunological levels in
patients treated with old and new AEDs. Epilepsia, volume
43, S8, p 57, October 2002
- Mifsud J, Gafa M, Micallef M. Traditional and new AEDs
effect on in vitro lymphocyte proliferation assays. European
Journal of Pharmaceutical Sciences, vol 17, S1, P68 2002
- Various information leaflets in Maltese on Epilepsy
- Video in Maltese
Meetings
- National Epilepsy Conference in conjunction with Malta
Caritas Epilepsy Association, February 2003
Summary of activities in 2002
and 2003
- The members participated in all the major interesting
epilepsy meetings held in 2002. Members Galea Debono, Aquilina,
D. Soler and J. Mifsud represented the Maltese society at
the European meeting of the League in Madrid in October
2002. During this meeting Mifsud was elected secretary of
the European Epilepsy Academy. V. Mifsud attended the Annual
American Neurology meeting. On the local scene the Society
collaborated with the support group in organising the local
conference in February 2003, which attracted over 250 participants
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Various press releases and fund-raising activities in
conjunction with the local Bureau chapter
Future plans
- European Epilepsy and Society meeting to be held in Malta
in March 2004.
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Mexican
League Against Epilepsy
Ricardo A. Rangel Guerra, President
Colonia Miravalle Monterrey
José Benitez No. 2704 Col. Obispado
64660 Monterrey
Mexico N.L.
MEXICO
Phone: +52 83 33 14 66
Fax: +52 83 33 29 93
Email:
Hector R. Martinez, Secretary General
Col. Mitras Centro
Ave Madera y Gonzaliter
64460 Monterrey
MEXICO
Juvenal Gutierrez-Moctezuma, Board Member
Natl Med Ctr, 20 de Noviembre ISSSTE
Insurgentes Sur. No. 421-A-301 - Col.
Hipodromo Co
6170 Delegacion Cuauhtemoc - C.P.
Mexico D.F.
MEXICO
Phone: +52 55 64 43 26
Fax: +52 55 84 07 99
Email:
During the last year, the Mexican Chapter of ILAE (CAMELICE)
organised several academic courses in some cities within our
country including: Reynosa (Tamaulipas), Linares (Nuevo Leon),
Leon (Guanajuato), Saltillo (Coahuila), and during these meetings
we had an audience composed of general practitioners, pediatricians,
and child and adult neurologists. After each session we spent
several hours giving neurological consultation to epileptic
patients (adults and children). We also have had several programs
on local radio and TV stations about epilepsy in children
and adults. Our annual meeting was in Tuxtla Gutierrez (Chiapas).
The meeting was of the highest academic quality and the audience
was completely satisfied with the educational information
that they received. Our next annual meeting will be held in
Veracruz, Veracruz on 2, 3 and 4 October 2003. |
Moldavian
League Against Epilepsy
Stanislav Groppa, President
Medical State University - SMPU "N.
Testemitsanu"
Department of Postgraduate Studies
43, Cuza Voda Str. 36
2072 Chisinau
MOLDAVIA
Phone: +373 27 63 702
Fax: +373 22 46 264
Email:
Ion Artemi, Vice President
National Practical Scientific Center in Domain
of Medical Emergencies
Neurology and Neurosurgery Clinic
59/1 Corolenco Str. 44
2025 Chisinau
MOLDAVIA
Phone: +373 29 16 16 06
Fax: +373 22 46 264
Constantin Turcan, Vice President
Republican Psychiatry Hospital
Costiujeni 3
22 Valea Crucii Str. 134
2072 Chisinau
MOLDAVIA
Phone: +373 27 94 091
Fax: +373 27 61 569
Email:
Lilia Zaporojan, Secretariat
Medical State University - SMPU "N.
Testemitsanu"
Neurology and Neurosurgery Clinic
7/1 Deleanu Str. 55
2071 Chisinau
MOLDAVIA
Phone: +373 25 16 384
Fax: +373 22 46 264
Email:
Gabriela Lesinschi, Treasurer
Medical State University - SMPU "N.
Testemitsanu"
Neurology and Neurosurgery Clinic
19 Dacia Str. 14
2038 Chisinau
MOLDAVIA
Phone: +373 25 27 487
Fax: +373 22 46 264
Email:
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Moroccan
League Against Epilepsy
Reda Ouazzani, President
Hopital Des Specialites
Service de Neurophysiologie Clinique
Rabat
MOROCCO
Phone: +212 61 15 30 54
Fax: +212 37 77 01 99
Email:
H. Ouahabi, Vice President
Najib Kissani, Secretary General
El Razi Hospital
BP 7010 Sidi Abad
40000 Marrakech
MOROCCO
Phone: +212 63 08 10 35
Fax: +212 37 77 01 99
Email:
M. Itri, 1st Secretary
M. Taki, Treasurer
F. Lahjouji, Board Member
Madani, Board Member
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Nepal
Epilepsy Society
J.P. Agrawal, President
T.U. Teaching Hospital
Neurology Service
Kathmandu
NEPAL
Phone: + 97 71 44 72 438
Email:
Rabindra Shresta, Vice President
Kathmandu Medical College
Department of Internal Medicine
Sinamangal
Kathmandu
NEPAL
Phone: +97 71 44 12 435
Email:
K.C. Rajbhandari, Secretary General
Kathmandu Medical College
Department of Psychiatry
Sinamangal
Kathmandu
NEPAL
Phone: +97 71 43 72 662
Fax: +97 71 27 23 74
Email:
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The
Netherlands: Dutch League Against Epilepsy
Steven de Froe, President
Stichting Hans Berger Kliniek
Galderseweg 81
4836 AE Breda
The Netherlands
Phone: +31 76 560 84 65
Fax: +31 76 560 82 04
Email:
Gerrit-Jan de Haan, Secretary Generaal
Achterweg 5
2103 SW Heemstede
The Netherlands
Phone: + 31 23 5237 237
Fax: + 31 23 529 4055
Email:
Hans Stroink, Treasurer
Sint Elisabeth Ziekenhuis Tilburg
Afdeling Kinderneurologie
Postbus 90151
5000 LC Tilburg
The Netherlands
Phone: +31 13 5392552
Fax: + 31 13 5422538
Email:
Wil van den Akker, Secretariat
P/a Nationaal Epilepsie Fonds
Postbus 270
3990 GB Houten
The Netherlands
Phone: +31 30 63 440 63
Fax: +31 30 63 440 60
Email:
Publications
- Nederlands Tijdschrift voor Epilepsie. Since 2003 published
under a new name: Epilepsie, periodiek voor professionals
Meetings
2002
- National Epilepsy Symposium, organised by the Dutch League
Against Epilepsy and the Dutch National Epilepsy Fund. Theme:
Push back frontiers. Subjects: neuroimaging, new AEDs, epilepsy
surgery, genetics and neurostimulation.
- The section Scientific Research (SWO) of the Dutch League
organised an investigators workshop during the Epilepsy
and Sleep Update Symposium of the epilepsy centre Kempenhaeghe.
Theme: New developments in presurgical evaluation.
- During the yearly international Endo-Neuro-Psycho-meeting
the SWO organised a session with the theme Brain plasticity
_ the epilepsy experience.
- The meeting in the second half of the year of SWO dealt
with epilepsy research in men and animals.
2003
- National Epilepsy Symposium, organised by the Dutch League
Against Epilepsy and the Dutch National Epilepsy Fund. Theme:
Epilepsy and women. Subjects: hormones, epilepsy and AEDs,
teratogene effects of AEDs, antenatal diagnostics, guidance
of pregnant people suffering from epilepsy and osteoporosis
- The SWO organised a Research Workshop "Neurophysiological
Modeling in Epilepsy during the Kempenhaeghe Symposium"
- During the Endo-Neuro-Psycho meeting: Neuromodeling:
an approach to the study of epileptogenesis
- Planned for the second half of the year: Research meeting
on biophysical and neurobiological aspects of epilepsy.
Future plans
- A Website will be created.
- In 2005 a symposium will be organised on the occasion
of the 25th anniversary of the Dutch League Against Epilepsy
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Norwegian
Chapter of International League Against Epilepsy
Leif Gjerstad, President
The National Hospital
0027 Oslo
NORWAY
Phone: +47 23 07 22 38
Fax: +47 23 07 48 91
Email:
Kari Mette Lillestolen, Secretariat
The National Centre for Epilepsy
PO Box 53, Baerum Postterminal
Sandvika
NORWAY
Phone: +47 67 55 41 67
Fax: +47 67 54 04 96
Email:
Some members of the Executive Committee will end their term
at the upcoming annual meeting, September 2003. The others,
including the president, will end their term September 2004.
Meetings
- Annual Meeting, 3-5 September 2002 in Kristiansand
- Symposium on Epilepsy and Genetics at the Annual Meeting
of The Norwegian Neurological Association, November 2002
in Oslo
- Annual Meeting, 4-6 September 2003 in Molde
- Symposium on Status Epilepticus at the Annual Meeting
of The Norwegian Neurological Association, November 2003
in Oslo
Summary Statement
The activity is gradually increasing. More than 100 participants
were at the annual meetings.
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Panama
League Against Epilepsy
Mario Larreategui, President
Clinica Venacio Villareal
199 Chitre Herrera
Panama
PANAMA
Phone: +507 99 64 185
Fax: +507 99 61 383
Email:
Luis Carlos Castillo, Vice President
Policlinica San Fernando Norte
Zona 9 Panama
1439 Panama
PANAMA
Phone: +507 22 91 677
Fax: +507 22 98 377
Email:
Evelia Gomez Wong, Secretary General
Policlinica San Fernando Norte
7309, Zona 5
Panama
PANAMA
Phone: +507 27 86 300 / +507 61 78 792
Fax: +507 22 98 377
Email:
Ernesto E. Triana Bernal, Secretariat
Policlinica San Fernando Sur
P.O. Box 363
6-11202 El Dorado 9A Panama
PANAMA
Phone: +507 22 90 300
Fax: +507 22 91 599
Email:
Fernando Garcia, Treasurer
Consultorlos Medicos Paltilla
3392 Zona 4
Panama
PANAMA
Phone: +507 26 95 222
Fax: +507 26 94 368
Email:
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Paraguayan
League Against Epilepsy
Carlos Arbo, President
Avenida Espana 649 Esquina Rosa Pena
Asuncion
PARAGUAY
Phone: +595 21 22 17 03
Fax: +595 21 22 17 03
Email:
Ana Quintana, Vice President
Marta Cabrera de Abente, Secretary General
Facundo R. Machain 6250 c/R.I. 2
Ytororo Asuncion
PARAGUAY
Phone: + 595 21 22 17 03
Fax: + 595 21 22 17 03
Alicia Aldana, Treasurer
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Peruvian
League Against Epilepsy
Juan Altamirano, President
Jr. Alfredo Salazar 314
Lima 27 San Isidro
PERU
Phone: +51 14 21 99 39
Fax: +51 14 22 87 13
Email:
Patricia Campos Olazabal, Secretariat
PERU
Phone: +51 14 41 79 50
Fax: +51 14 61 50 14
Email:
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Philippine
League Against Epilepsy
Leonor I. Cabral-Lim, President
Department of Neurosciences
Philippine General Hospital
Taft Ave.
Ermita, Manila, 1000
Philippines
Phone: (632) 711-3946; (632) 525-4996
Fax: (632) 713-6001; (632) 525-4996
Email:
Elma S. Marañon, 1st Vice-President
Rm. 265 St. Paul's Hospital
CADMA Doctor's Offices
Iloilo City
Philippines
Phone: (6333) 336-9057
Email:
Johnny K. Lokin, 2nd Vice-President
Rm. 2001 Medical Arts Bldg.
University of Santo Tomas Hospital
España, Manila
Philippines
Phone: (632) 731-3003
Email:
Martha C. T. Lu-Bolaños, Secretary
Child Neuroscience Division
Philippine Children's Medical Center,
Quezon Avenue, Quezon City
Philippines
Phone: (632) 924-6601 loc. 307
Fax: (632) 711-7872
Email:
Madeleine M. Sosa, Treasurer
Department of Pediatrics
De la Salle University Medical Center
Dasmariñas, Cavite
Philippines
Phone: (046) 4160226
Email:
Secretariat or Contact Address
Philippine League Against Epilepsy, Inc.
Department of Neurosciences
Philippine General Hospital
Taft Ave., Ermita, Manila
Philippines
Phone/Fax: (632) 525-4996
http: //www.plae.org
Officers were elected 7 September 2001 during the Annual
Business Meeting held at the Westin Philippine Plaza for the
term 1 January 2002 to 31 December 2003.
Publications and Information Materials
- PLAE Newsletter-June 2002, November 2002, June 2003
- "Epilepsy: Out of the Shadows" Philippines Campaign
Leaflet
- What to do during a Seizure (English and Pilipino Version)
- Seven Habits of Highly Responsible Patients (English and
Pilipino Version)
Summary of activities in 2002
and 2003
- Epilepsy Awareness
(See Summary of Activities in Relation to Global Campaign)
- Continuing Medical Education
A. For primary care physicians
Basic Clinical Epilepsy Interactive
Sessions using an interactive teaching module: "Epilepsy:
An Interactive Module Designed for Non-neurologists." About
50 industry assisted sessions were held nationwide (January-September
2002); 20 sessions held during the 1st National Epilepsy Awareness
Week (2-8 September 2002) held in 19 towns/cities covering 11
regions. Each session was attended by 30-50 participants.
Tie-in with the Philippine Neurological Association regular
Outreach Programs in the provinces using the same teaching
module (2002)
B. Launching, Implementation, Evaluation of the Epilepsy
Manager Program (June 2002-August 2003), a pilot project of
the CME Committee to "make available to the Filipino
people, within a radius of one hour bus ride or less from
their homes, a doctor who is competent in managing persons
with epilepsy at the primary care level." Outcome of
the program to be presented at the 2nd National Epilepsy Congress,
6 September 2003. Complete program description is available
at http://www.plae.org (Ongoing Projects).
C. Lectures/Symposia on epilepsy were held during the annual
or midyear conventions of the different medical associations
involved in the care of persons with epilepsy, including:
- Philippine Medical Association Convention
23 May 2002, Epilepsy Symposium, Philippine International
Convention Center, Pasay City. Topics included: "Epilepsy:
Out of the Shadows," Philippines Campaign, Antiepileptic
Drug Treatment Non-pharmacologic Strategies in Epilepsy
Management
- 23 May 2003, Interactive Session on Epilepsy and Pregnancy,
Manila Hotel, Manila
- Philippine Academy of Family Physicians,Midyear Convention
7 September 2002, Bacolod City
Topics: "Epilepsy: Out of the Shadows" PHILIPPINES
Campaign
EPILEPSY: "Primary Care"
Programs for members included: the Clinical Dilemmas in Epilepsy
Management Series held biennially with the Epilepsy Council
of the Philippine Neurological Association (alternates with
the National Epilepsy Congress). Participants discussed problem
cases seen in practice by the members of both organisations,
together with a panel of experts on 20 November 2002.
National Epilepsy Congress
2nd National Epilepsy Congress, 5-6 September 2003, Westin,
Philippine Plaza, Pasay City
- BRIDGES Project, Bridging Referrals to Improve Delivery
of Grassroots Epilepsy Services, January 2002 and ongoing.
This is a project of the PLAE Health Care Delivery Committee
to bring epilepsy care to the grassroots. For a complete
description of the project see http://www.plae.org
- Participation in International Meetings
- The 4th Asian and Oceanian Epilepsy Congress
Karuizawa, Japan, 11-14 September 2002
There were two recipients of the ILAE/Dainippon Grant, Hazel
Paragua from the University of the Philippines _ Philippine
General Hospital and Neil Ambasing from De La Salle University
_ Emilio Aguinaldo College. Their papers were entitled,
"The Neurologic, Obstetric and Pediatric Significance
of Maternal Seizures" and "A Survey of Practices
in Epilepsy Management Among Physicians in Cavite, Philippines,"
respectively.
- Epilepsy Care in Asia Workshop
Josephine C. Gutierrez represented the Philippines in a
workshop "Epilepsy Care in Asia" organised by
the Commission on Asian and Oceanian Affairs held at the
National Epilepsy Center in Shizuoka, Japan, 16 September
2002.
- Venice Epilepsy Summer School
Conrad Nievera received a full grant to participate in the
Advanced International Course: Bridging Basic with Clinical
Epileptology sponsored jointly by the ILAE, INSV and NATO
Science Programme held at the Venice International University,
San Servolo, Venice, Italy from 21 July through 4 August
2002.
Hazel Paragua received a full grant to participate in the
International Course: From Basic Knowledge to Rational Prescribing
in Epilepsy, Venice Epilepsy Summer School, International
School of Neurological Sciences of Venice sponsored by the
ILAE Commission on Therapeutic Strategies, Commission on
European Affairs and European Epilepsy Academy held at the
Venice International University, San Servolo, Venice, Italy
from 10-19 July 2003.
Summary of activities in relation
to Global Campaign in 2002 and 2003
- The PLAE, Inc. formally launched "Epilepsy Out of
the Shadows" Philippines, a national campaign against
epilepsy as part of the Global Campaign last on 8 September
2001. The national epilepsy campaign is an initiative of
the PLAE and will be developed within the already existing
national health care system in collaboration with the Department
of Health, the public and private sectors, relevant nongovernmental
organisations, patients, families and their caregivers as
partners
- This campaign will be pursued along the same strategy
of the Global Campaign and includes two parallel and simultaneous
tracks: to raise general awareness and understanding of
epilepsy and to support the Department of Health in identifying
the needs and promoting education, training, treatment,
services, research and prevention nationally
Future plans
Wider implementation of the BRIDGES project and the Epilepsy
Manager Program, with priority in areas where they are most
needed.
We will continue:
- exploring avenues to make the conventional AEDs affordable
and available to most of our patients
- collaborating with concerned sectors/partners in the ongoing
national epilepsy campaign
- promoting epilepsy awareness nationwide
- advocating for the protection of the rights of PWE in
our country
- affiliation with the "Friends of PLAE" as a
national chapter of the IBE
- work on the Epilepsy Registry Project
- encouraging further training in epileptology
Summary Statement
Over the last two years the organisation has focused on
the following activities:
- Improving the quality and delivery of epilepsy care to
the grassroots through the CME for primary care physicians,
Epilepsy Manager Program Pilot Project and the organisation
and beginning of the BRIDGES Project
- Continuing professional growth of the members through
the National Epilepsy Congress, Clinical Dilemmas Series
and participation in Regional and International Epilepsy
meetings/workshops and courses
- Promoting epilepsy awareness nationwide through the PAVE,
National Lay Symposium, National Epilepsy Awareness Week
Proclamation and celebration, tri-media information campaign,
Web page and Epilepsy Hotline
- Organisation of the "Friends of PLAE," a lay
support group composed of PWE and their families and caregivers
- Addressing patient concerns such as availability and
affordability of AEDs, availability and access to epilepsy
care services and rights of persons with epilepsy
We have indeed come a long way since formulating our mission/vision
in 1999.We salute the members for their volunteerism and extend
our deepest appreciation to all those who have contributed
to the tasks we have accomplished.
We would like to thank the ILAE for the opportunity given
to our young colleagues to participate in its scientific activities.
Participation of the affiliate chapters in ILAE activities
is an effective way to promote the advancement of epilepsy
treatment worldwide.
The years ahead see us working toward completing our projects.With
the continued commitment of our members and all those who
share with us the same mission, and the support of ILAE, we
know we are not far away from translating the rest of our
vision into reality.
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Polish
League Against Epilepsy
Janusz Wendorff, President
Polish Mother's Memorial Hospital Institute
Department Neurology
Rzgowska 281/289 Str.
93-338 Lodz
POLAND
Phone: +48 42 271 14 12
Fax: +48 42 271 14 12
Email:
Joanna Jedrzejczak, Vice President
Medical Centre for Postgraduate Education
Neurology & Epileptology Dept.
231 Czerniakowska Str.
00-416 Warsaw
POLAND
Phone: +48 22 62 94 349
Fax: +48 22 62 51 014
Email:
Jerzy Majkowski, Past President
Wiertnicza Street 122
02-952 Warsaw
POLAND
Phone: +48 22 84 22 492
Fax: +48 22 64 27 434
Email:
Piotr Wlerian
Medical Centre for Postgraduate Education
Neurology & Epileptology Dept.
231 Czerniakowska
00-416 Warsaw
POLAND
Phone: +48 22 62 94 349
Fax: +48 22 62 51 014
Email:
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Portuguese
League Against Epilepsy
Francisco Pinto, President
R. Republica do Paraguai 29 -3° Frente
1750-247 Lisboa
PORTUGAL
Phone: +351 21 79 59 329
Fax: +351 21 79 59 329
Email:
José Lopes Lima, Secretary-General
Trav. Requesende
4000 Oporto
PORTUGAL
Phone: +351 22 830 767
Fax: +351 22 830 767
Email:
Dílio Alves, Treasurer
Rua Quinta das Chas, 148 casa 5
4400 556 Vila Nova Gaia
PORTUGAL
Phone: +351 227 724 763
Fax: +351 229 391 708
Email:
Francisco Sales
Manuel Gonçalves
Paulo Nuno, Secretariat
Publications
- Noticias da Epilepsia
- Security and Epilepsy
- Driving License and Epilepsy
- Employment and Epilepsy
- First Aid during a Seizure
- Epilepsy and School
- Epilepsy and Employment
- Epilepsy Generalities
- Women and Epilepsy
Meetings
- Annual National Meeting 2002
- Teaching course for young neurologists under the umbrella
of Eurepa - 2002
- Annual National Meeting 2003
- Regional Scientific Meetings involving neurologists and/or
general practitioners
- Educational meetings for psychologists, teachers, people
with epilepsy and their relatives
Summary of activities in 2002
and 2003
- Meetings organisation
- Participation in Global Campaign
- Campaign to find new associates
- Development of activities of Self-Aid Groups
- Participation in international projects of ILAE and IBE
- Establishment of self headquarters in Oporto, Coimbra
and Lisbon
- Internet site
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Contact with health authorities
- Publication and dissemination of posters and booklets
concerning epilepsy
- Information in our Website
- Meetings
- Dissemination of European White Book
Future plans
- Organisation of Lisbon International Meeting
- Organisation of regional meetings
Summary Statement
A lot of work yet to do, mainly concerning health authorities
and development of epilepsy surgery.
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Qatar
League Against Epilepsy
Ahmed Hamad, President
Hamad General Hospital
H/o Neurology Dept.
P.O. Box 3050
Doha
QATAR
Phone: +974 43 92 773
Fax: +974 43 92 273
Email:
Tag Eldin O Sokrab, Secretary General
Hamad General Hospital
Department of Medicine, Neurology Division
P.O. Box 3050
Doha
QATAR
Phone: +974 43 92 773
Fax: +974 43 92 273
Email:
Tag Eldin O Sokrab, Treasurer
Hamad General Hospital
Department of Medicine, Neurology Division
P.O. Box 3050
Doha
QATAR
Phone: +974 43 92 773
Fax: +974 43 92 773
Email:
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Romanian
Society Against Epilepsy
Ioan-Radu Rogozea, President
Hospital "Bagdasar-Arseni"
I Neurosurgical Clinic, Dept. of Epilepsy
Sos Berceni No.10, OP 8, sect. 4
75622 Bucharest
ROMANIA
Phone: +401 461 05 02
Fax: +401 334 73 50
Email:
Al. Constantinovici, Vice-President
Al. Serbanescu, Vice-President
Claudia-Geanina Maris, Secretary General
Hospital "Bagdasar-Arseni"
I Neurosurgical Clinic, Dept. of Epilepsy
Sos. Berceni No.10, OP 8, sect. 4
75622 Bucharest
ROMANIA
Phone: +401 461 05 02
Fax: +401334 73 50
Publications
- Journal of Neurology
- Journal of Neurosurgery
Information material published
- Guide for diagnosis and treatment of epilepsy
- Actualities in diagnosis of epilepsy
- Mistake diagnosis in epilepsy
Activities in relation to
the Global Campaign against Epilepsy
- Campaign for public awareness about epilepsy: a number
of educational lectures were given; also our experts had
several presentations on TV and in newspapers. The reaction
and results were positive and quite promising, so we plan
to continue with even more activities in the following year.
Meetings and Activities
- 11th National Conference of the Romanian Society Against
Epilepsy was organised in Bucharest, Rom-Expo Complex, Romania,
on 24-25 May 2002. It was attended by 322 members of the
Society, who participated together with numerous neurologists,
psychiatrists, neurosurgeons, pediatricians and psychologists.
P. Wolf, President of the European Academy of Epileptology
(EUREPA), attended as a guest
- Topics of the Symposium:
"Actualities in Epilepsy," the first seizure and
the secondary prevention of epilepsy, biochemical and genetical
basis of epilepsy, membrane electrical phenomenon in epilepsy,
actual data concerning epileptic absences, neuroimaging
diagnosis of temporal lobe epilepsy, clinical-therapeutical
peculiarities of post-traumatic epilepsy, epilepsy in elderly,
mistakes in diagnosis of epilepsy, new syndromes in children,
etc.
Also organised was a satellite symposium concerning practical
electroencephalography
- The National Epilepsy Center has established full activities
- The Romanian Society Against Epilepsy organised in 2002
educational courses in the management of epilepsy for general
practitioners, epileptologists and neurologists
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Russian
League Against Epilepsy
Gagik Avakian, President
Russian State Medical University
Leninsky Prospect 8 bl. 8
117049 Moscow
RUSSIA
Phone: +7 09 52 36 91 23
Fax: +7 09 52 62 19 99
Email:
@
Alla Guekht, Secretary General
Prospect Mira 118A Apt. 46
129164 Moscow
RUSSIA
Phone: +7 09 52 36 92 28
Fax: +7 09 52 62 19 99
Email:
/
Anna Lebedeva, Treasurer
Russian State Medical University
Department of Neurology
Leninsky Prospect 8 Bl.8
117049 Moscow
RUSSIA
Phone: +7 09 52 36 92 26
Fax: +7 09 52 62 19 99
Email:
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Saudi
Chapter of Epilepsy
Saleh M. Al Deeb, President
Riyadh Armed Forces Hospital
P. O. Box 7897
11159 Riyadh
SAUDI ARABIA
Phone: +966 14 77 77 14
Fax: +966 14 77 71 94
Email:
Abdulrahman Al-Tahan, Vice President
King Saud University College of Medicine
King Khalid University Hospital
P.O. Box 7805 (38)
11472 Riyadh
SAUDI ARABIA
Phone: +966 46 71 532 / +966 46 71 493
Fax: +966 46 72 424
Email:
Saeed Bohlega, Vice President
King Faisal Specialist Hospital and Research
Centre
P.O. Box 3354
11211 Riyadh
SAUDI ARABIA
Phone: +966 44 24 760
Fax : +966 44 24 763 / +966 44 24 761
Email :
Basim Yaqub, Secretary General
Riyadh Armed Forces Hospital
Department of Neurosciences
P. O. Box 7897
7897 Riyadh
SAUDI ARABIA
Phone: +966 14 77 77 14 ext. 5419
Fax: +966 14 77 71 94
Email:
Saad Al-Shahwan, Treasurer
Riyadh Armed Forces Hospital
P. O. Box 7897
11159 Riyadh
SAUDI ARABIA
Phone: +966 14 77 77 14
Fax: +966 14 77 71 94
Email:
/
|
Senegal
League Against Epilepsy
Amadou Gallo Diop, President
CHU de Fann
Clinique Neurologique
B.P. 5035
Dakar
SENEGAL
Phone: +221 86 40 340 / +221 68 05 297
Fax: +221 86 40 339
Email:
|
Singapore
Epilepsy Society
Wei-Ling Lee, President
National Neuroscience Institute
11 Jalan Tan Tock Seng
308433
SINGAPORE
Phone: +65 35 77 070
Fax: +65 35 77 069
Email:
K. Puvanendran, Vice President
Singapore General Hospital
Department of Neurology
Outram Road
169608
SINGAPORE
Phone: +65 63 57 76 00
Fax: +65 63 57 71 37
Email:
Shih-Hui Lim, Secretary General
Singapore General Hospital
Dept. of Neurology
Outram Road
169608
SINGAPORE
Fax: +65 22 03 321
Email:
/
Hian Tat Ong, Treasurer
National University Hospital
Department of Pediatrics - Neurology Unit
5 Lower Kent Ridge Road
119074 Singapore
SINGAPORE
Phone: +65 77 24 420
Fax: +65 77 97 486
Email:
|
| Slovak
League Against Epilepsy
Vladimir Donath, President
F.D. Roosevelt Hospital
Department of Neurology
Nam. L. Svobody 1
975 17 Banska Bystrica
SLOVAKIA
Phone: +42 14 84 13 03 97
Fax: +42 14 84 13 03 97
Email:
Pavol Sykora, Vice President
Children's University Hospital
Department of Child Neurology
Limbova 1
833 40 Bratislava
SLOVAKIA
Helena Stillova, Secretary
Priv. Neurol. Amb.
Nemocnicna 1944
Dolny Kubin
SLOVAKIA
Darina Buranova, Officer
Comenius Univ. School of Medicine
Department of Neurology
Mickiewiczova 13
Bratislava 813 69
SLOVAKIA
Marian Kuchar, Officer
Pri kríži 18
841 02 Bratislava
SLOVAKIA
Phone: +421 75 95 42 404
Email:
Term ends May 2008.
Publications
- Donáth V.: The Most Frequent Complications in Epilepsy,
Lekárske Listy, 2003 Nr. 23, p. 6-8
- Donáth V.: Iatrogenic problems of antiepileptic
drugs. Neurologie pro praxi 2003, 3, s.13- 17
- Vladimír Donáth V, Kuchar M, Buranová
D, Sýkora P, Pit'hová B: The problem of driving
licency for epileptic patients in Slovakia. Neurologie pro
praxi, 2003 (in print)
Meetings
- Working meeting of SLAE, 8 November 2002, Sachticka,
Banska Bystrica
- 25th Epileptological Congress of Czech and Slovak League
Against Epilepsy, 23-24 October 2003
Summary of activities in 2002
and 2003
- Organising the elections of SLAE committee
- Cooperation with patient organisation AURA
- Postgraduate courses on EEG and epileptology (supported
by Mediforum Glaxo SKB and Janssen Cilag)
Future plans
- Closer cooperation with IBE
- Updating the Textbook of Epilepsy
- Continuing educational EEG and epileptological courses
|
Slovenian
League Against Epilepsy
Igor M. Ravnik, President
University Medical Center Ljublana
Division of Paediatrics, Centre for Epilepsy
1525 Ljubljana
SLOVENIA
Phone: +386 15 22 92 00
Fax: +386 15 22 93 57
Email:
Bogdan Lorber, Vice President
University Medical Centre
Division of Neurology
1525 Ljubljana
SLOVENIA
Phone: +386 15 22 43 24
Fax: +386 15 22 22 08
Email:
Ljubica Vrba, Secretary General
University Medical Centre
Division of Paediatrics, Unit of Clinical
Psychology
1525 Ljubljana
SLOVENIA
Phone: +386 15 22 92 00
Fax: +386 15 22 93 57
Email:
Slovenian League Against Epilepsy, Secretariat
Slovenian Chapter of ILAE
Ulica Stare Pravde 2
1000 Ljubljana
SLOVENIA
Phone: +386 14 32 93 93
Email:
Matevz Krzan, Treasurer
University Medical Centre
Division of Paediatrics, Centre for Epilepsy
1525 Ljubljana
SLOVENIA
Phone: +386 15 22 92 00
Fax: +386 15 22 93 57
Email:
Dusan Butinar, Past President
University Medical Centre
Division of Neurology, Department of
Neurophysiology
1525 Ljubljana
SLOVENIA
Phone: +386 15 22 15 00
Fax: +386 15 22 15 33
Email:
|
Spanish
League Against Epilepsy
Ines Picornell Darder, President
Paseo de la Castellana 244 8B
28045 Madrid
SPAIN
Phone: +34 91 53 39 769
Fax: +34 91 53 39 769
Email:
Jaime Campos Castello, Vice President
Raza 7 chalet 3
28022 Madrid
SPAIN
Phone: +34 91 74 10 371
Fax: +34 91 33 03 553
Email:
Tomas Ortiz Alonso, Treasurer
Linea 5 Alamo
28224 Pozuelo de Alarcon, Madrid
SPAIN
Phone: +34 91 41 56 124
Email:
Antonio Russi Tintoré, Past President
Madrazo, 33-37 4° 3°
08006 Barcelona
SPAIN
Email:
José Antonio Gil Verona
San Augustin 16, 3 izd
47003 Valladolid
SPAIN
Phone: +34 62 98 32 741
Fax: +34 98 34 23 022
Email:
|
Swedish
Chapter of the ILAE
Ingrid Olsson, President
Queen Silvia Children's Hospital
SU Östra
416-85 Göteborg
SWEDEN
Phone: +46 31 34 34 705
Fax: +46 31 25 79 60
Email:
Eva Kumlien, Vice President
Uppsala
SWEDEN
Email:
Bertil Rydenhag, Secretary
University Hospital Göteborg
Div. of Neurosurgery
413-45 Göteborg
SWEDEN
Phone: +46 31 34 21 000
Email:
Roland Flink, Treasurer
Academic Hospital
Department of Clinical Neurophysiology
751-85 Uppsala
SWEDEN
Phone: +46 18 61 13 428
Fax: +46 18 55 61 06
Email:
Kristina Malmgren, International Delegate
Email:
Meetings
- Annual course "Women and Epilepsy," Stockholm,
8-9 November 2002
- Planned annual course "Epilepsy and Mental Retardation,"
Göteborg, 14-15 November 2003
- Workshop "Epileptic seizures in the neonatal period,"
Stockholm, 22 August 2002
- Workshop "Non-epileptic psychogenic seizures,"
Göteborg, 20 September 2002
- Workshop on VNS, Uppsala, 14 August 2003
- Planned workshop "Memory functions," Lund, 19
September 2003
- Training course in epilepsy in adults and children, 2-6
September 2002
- Planned training course in epilepsy in adults and children,
1-5 September 2003
- Sponsored lecturer (P. Wolf) at the conference "Epilepsy,
neurobiology and religious creativity," Vadstena, March
2003
Summary of activities in 2002
and 2003
- Apart from the mentioned meetings and courses, work was
done to elaborate and expand the Website.
Future plans
- Planned workshops, seminars in 2004: Epilepsy and osteoporosis,
catastrophic epilepsy in childhood, epilepsy and genetics
- Planned annual course in 2004: Epidemiology of epilepsy
|
Swiss
League Against Epilepsy
Günter Krämer, President
Medizinischer Direktor
Schweiz. Epilepsie-Zentrum
Bleulerstr. 60
CH-8008 Zürich
Switzerland
Phone: +41 1 387 63 02
Fax: +41 1 387 63 96
Email:
(secretary of the president: Claudia Mühlebach; Email:
)
Kuno Spirig, Secretariat
Schweiz. Liga gegen Epilepsie (SLgE)
Seefeldstrasse 84
Postfachg 1084
CH-8034 Zürich
Switzerland
Phone: +41 43 488 67 77
Fax: +41 43 488 67 78
Email:
Website: http://www.epi.ch
Elected: 2001-2004
History
The history of the Swiss League Against Epilepsy (SLgE) is
covered in an article in the Swiss Epilepsy Report 2002 (p.
119-127, see publications). In May 2002 the members of the
Swiss League Against Epilepsy (SLgE) accepted the new statutes,
effective from 1 January 2003. At that date SLgE transferred
all social services (financed by the Swiss government) to
the Swiss Epilepsy Association (epi-suisse), member of IBE,
founded on 2 July 2002 and active from 1 January 2003.
Publications
- Swiss Epilepsy report 2002, with 182 pages informing of
different aspects of epilepsy (social and medical) in Switzerland
(edited by G. Krämer and H.G. Wieser, isbn 3-9806107-9-9)
- Release of the new journal "epileptologie" three
times a year with 48 pages each, with information about
new developments in epilepsy research and therapies
- Two new information leaflets about our league, one for
professionals and one for lay people, in German, French
and Italian
- Annual report in German and French
Meetings
2002
- Joint Annual Meeting of the Swiss League Against Epilepsy
together with the Swiss Society for Clinical Neurophysiology
(in Aarau, 2-4 May) with a variety of lectures
Summary of activities in 2002
and 2003
2002
- Three annual events in different towns, open to members
as well as to the public, with several lectures by epilepsy
experts. Main Topic: "Life with epilepsy"
- First "National Day of Epilepsy": Organisation
of the main event in Zurich on 5 October, with an interview
with Michael Birkenmeier (actor) about his personal experience
living with epilepsy and other lectures. Topic: "Job
and Epilepsy"
2003
- "Day of the open doors": Opening of our new
offices, which we share with epi-suisse (member of IBE)
and with a lot of guests (members, sponsors, doctors, neighbours,
etc.)
- Joint annual meeting of the Swiss League Against Epilepsy
together with the German and the Austrian chapter of ILAE
in Berlin, 3-5 April
- For the first time SLgE offers two prizes:
- for the best dissertation of the year in medicine,
neuropsychology or other fields related to the subject
of epilepsy
- for special efforts in epilepsy research
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Contribution to the "Epilepsy Action Pack" of
Eucare
Future plans
- Organisation of: Three annual events in different towns
with a professional part (inviting medical professionals)
and a social part for the interested public (organised by
epi-suisse). Topics: Modern treatments and new developments
in the field of Epilepsy / Modern Epilepsy Surgery
- Annual "National Day of Epilepsy" in Berne,
4 October. Topic: Children and Epilepsy
- Annual meeting for our members in Zurich, 20 November
- Redesign of our homepage www.epi.ch
- Launch of a printed newsletter
Summary Statement
After its reorganisation, the Swiss League Against Epilepsy
started to concentrate its efforts to improve and spread the
professional knowledge of epilepsy and to support epilepsy
research.
|
Syrian
Chapter of Epilepsy
Ahmad Khalifa, President
P.O. Box 10053
Damascus
SYRIA
Phone: +963 11 33 10 600
Fax: +963 11 33 17 569
Email:
M. Shehadeh Agha, Secretary
Syrian Medical Council
P.O. Box 10053
Damascus
SYRIA
Phone: +963 11 33 10 600
Fax: +963 11 33 22 922
Emad Sabbagh, Treasurer
End of the term for the present Executive Committee is 15
May 2005.
Meetings
- 27 June 2002 in conjunction with 8th annual meeting of
Syrian Society of Neuro
- 8-10 September 2002; Epilepsy & EEG, Syrian-Swedish
course and congress
- During the course, issues of continuum about epilepsy
were discussed in collaboration with World Federation of
Neurology-Education programme
- 26 June 2003 one-day symposium, in conjunction with 9th
annual meeting of Syrian Society of Neurosciences
Summary of activities in 2002
and 2003
- One lecture at least about epilepsy in each course of
continous education programme, held approximately bimonthly,
in different provinces in Syria. This programme is arranged
with collaboration of WFN-education committee.
Future plans
- Presidential lecture on epilepsy during the next course
of learning disabilities in Hamma, Syria, on 24 July 2003
- Epilepsy in children: during Syrian-Swedish congress,
September 2003.
- Epilepsy in adults: during the next Syrian-French congress,
October 2003
|
Taiwan
Epilepsy Society
Chi-Wan Lai, President
The Neurological Institute Veterans General
Hospital
Section of Epilepsy
Shih-pai Road, Sec. 2
201 Taipei
TAIWAN
Phone: +886 22 87 62 890
Fax: +886 22 87 62 891
Email:
Hsiang-Yu Yu, Secretary-General
The Neurological Institute Veterans General
Hospital
Section of Epilepsy
Shih-pai Road, Sec. 2
201 Taipei
TAIWAN
Phone: +886 22 87 57 578
Fax: +886 22 87 57 579
Email:
Yu-Mei Liu, Secretary
No. 201, Sec. 2, Shih-pai Road
Shih-pai, Taipei, 11217
Taiwan
Phone: +886 22 87 62 890
Fax: +886 22 87 62 891
History
Taiwan Epilepsy Society (TES) was established in 1990 by
a group of neurologists interested in treating patients with
epilepsy. But the history should be traced back to the 1980s
when neurologists from Taiwan started attending international
epilepsy workshops, symposia and annual meetings of international
epilepsy societies. Neurologists and pediatricians interested
in epilepsy started having regular meetings under the leadership
of Ming-Shung Su and Marshal (Mo-Song) Hsi. When Jing-Jane
Tsai returned to Taiwan in 1988 after having studied epilepsy
for 10 years in Germany, the group started seriously thinking
of establishing a national society devoted to the care of
epilepsy patients. The first comprehensive epilepsy program
was established in 1989 under the leadership of Ming-Sung
Su in Taipei Veteran General Hospital, where patients with
epilepsy received both medical and surgical care. They have
performed more than 600 cases of surgery, including temporal
lobectomy, corpus callosotomy and other surgeries.
Under the initiation of Jing-Jane Tsai, TES was formed in
1990 and Ming-Sung Su was elected as the first president of
the society. At our first TES meeting, we had the honor of
hosting distinguished guests Seino and Mukawa from Japan,
Wada and Yamamoto from Canada, and Fromm from the USA. Since
then we have held annual society meetings as well as several
international epilepsy meetings. TES joined the International
League Against Epilepsy (ILAE) in 1993 and has officially
become a member of ILAE ever since. So far, six distinguished
epileptologists have served as the president of the society,
each for two years, and the current president, Chi-Wan Lai,
was elected this year.
The counterpart of TES is the organisation of epilepsy patients,
called Taiwan Epilepsy Association (TEA), which was established
in 1995 under the leadership of Marshal (Mo-Song) Hsi. The
circulation of their monthly TEA Newsletter as well as quarterly
The Epilepsy News is now up to 10,000 copies. In
the meanwhile, 14 similar local organisations have been established
in different parts of Taiwan. TEA has been an official member
of International Bureau for Epilepsy (IBE) since 1997.
Since joining ILAE and IBE, Taiwan has been active in joining
international epilepsy activities. Jing-Jane Tsai has been
on the committee for Asian Oceanic Epilepsy Organisation (AOEO)
as well as Commission on Asian and Oceanian Affairs (CAOA)
and was elected the Ambassador for Epilepsy in 2001. Marshal
(Mo-Song) Hsi has been elected as one of the vice presidents
of IBE and also Ambassador for Epilepsy in 2003. Furthermore,
Chi-Wan Lai, Professor of Neurology and Co-director of the
Comprehensive Epilepsy Program at the University of Kansas,
returned to Taiwan in 1998 and received the Social Accomplishment
Award from ILAE/IBE in 2003.
So far, TES membership consists mainly of neurologists, neurosurgeons
and pediatric neurologists, and we are looking for opportunities
to recruit different disciplines, such as psychiatrists, nurses,
pharmacists, and social workers to join TES, in order to provide
comprehensive care for epilepsy patients.
prepared by Jing-Jane Tsai, translated and edited by
Chi-Wan Lai
Publications
- Newsletter of Taiwan Epilepsy Society (Four issues per
year) (in Chinese)
Meetings
- Annual meeting in April 2002
- Annual meeting in April 2003
Summary of activities in 2002
and 2003
- "Acquaintance of Epilepsy" — Educational programs
for school teachers and related faculty will be presented
in 4 regions in Taiwan on different dates, under the co-sponsorship
of the Ministry of Education Summary of activities in relation
to Global Campaign in 2002 and 2003
- Summer camp for children with epilepsy (16-17 August
2003) to provide social activities for children with epilepsy
and to educate the family, teachers and the public about
epilepsy
- Epilepsy awareness activities, including "Out of
the Shadows," (23 August 2003 in Tainan)
Future plans
- A Joint Symposium of Neurology and Psychiatry "Pseudoseizure"
in April 2004 Annual Meeting
Summary Statement
Taiwan Epilepsy Society (TES) is very active in promoting
the interest of research, education and service for epilepsy,
and is interested in working with all the patient groups (a
total of 14 in Taiwan) to improve the awareness of and attitude
toward epilepsy in society.
|
Epilepsy
Society of Thailand
Pongsakdi Visudhiphan, President
Ramathibodi Hospital, Mahidol University
Dept. of Pediatrics, Faculty of Medicine
Rama VI Road
10400 Bangkok
THAILAND
Phone: +66 22 01 14 88
Fax: +66 22 01 18 50
Email:
/
Praserd Boongerd, Vice President
Faculty of Medicine, Ramathibodi Hospital
Department of Medicine
Rama VI Road
10400 Bangkok
THAILAND
Phone: +66 22 01 11 36
Fax: +66 22 01 17 14
Prof. Surang Chiemchanya, Second Vice President
Dr. Somchai Towanabut, Secretary General
Prasat Neurological Institute
312 Rajvithi Road, Rajthevi
10400 Bangkok
THAILAND
Phone: +66 22 46 00 59 Ext. 362
Fax : +66 22 47 74 49
Email:
Dr. Suwannee Phancharoen, Treasurer
Chulalongkorn Hospital
Department of Pediatrics
Phatumwan
10330 Bangkok
THAILAND
Phone: +66 22 56 49 51
Fax: +66 22 56 49 71
Kanlaya Dhiravibulya, Board Member
Yotin Chinvarun, Board Member
Anannit Visudtibhan, Board Member
Araya Charuvanij, Board Member
Kaseansom Veranuvatti, Board Member
Malai Panichapong, Board Member
Kullapat Veerasan, Board Member
Chacrin Na Bangchang, Board Member
Siraruj Sokoolnamarka, Board Member
Rungsan Chaisewikul, Board Member
History
The Epilepsy Society of Thailand has been formed since 1996.
The Society was approved to be a Chapter of ILAE in 1997.
Publications
- Epilepsy Digest (Quarterly Bulletins)
- Newsletter for patients and family (Quarterly)
- Posters and brochures for patients and family regarding
treatment of epilepsy, social issues, learning problems
Meetings
- Pre-Congress Satellite Joint Congress of the 9th of ICNA
and the 7th AOCNA under the theme "Update in the understanding
and management of epilepsy," Bangkok, Thailand: 18-19
September 2002
- Annual Scientific Meeting 17-18 July 2003
Summary of activities in 2002
and 2003
- Business meeting: Monthly board meeting
- Annual meeting with epileptic patients and caretakers,
February 2002 and 2003
- EEG workshops for members, 2002
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Organisation of a national society for epileptic patients
and caretakers to join IBE which will lead to further activities
relating to Global Campaign
Future plans
- Promotion of close relationship between the Epilepsy
Society of Thailand and the Commission on Asian and Oceanian
Affairs
- The 5th Asian and Oceanian Epilepsy Congress will be
held in Bangkok, Thailand, 28-31 August 2004
Summary Statement
According to current status of the health care system of
Thailand and the study conducted by The Epilepsy Society of
Thailand concerning quality of and access to medical care
of epileptic patients throughout the country, there is a wide
gap between the medical care of patients living in the city
and in the remote areas. The Society has prepared guidelines
for uniform treatment, which is currently in the process of
evaluation in the communities with different levels of medical
facilities.
|
Tunisian
Association Against Epilepsy
Amel Mrabet, President
E.P.S. Charles Nicolle
Neurological Dept, EPS Charles Nicolle
12, Rue 3 Septembre
1006 Tunis
TUNISIA
Phone: +216 71 57 82 88 / +216 71 56 28
Fax: +216 71 56 28 34
Email:
Benlamine Neila, Vice President
Ministère de la Santé Publique
1006 Tunis
TUNISIA
Phone: +216 71 57 72 43
Mohamed Fredj, Secretary General
E.P.S. Charles Nicolle
Neurological Dept, EPS Charles Nicolle
12, Rue 3 Septembre
1006 Tunis
TUNISIA
Phone: +216 71 57 82 85
Fax: +216 71 56 28 34
Email:
Ezzahi Kacem Aroua, Treasurer
TUNISIA
Phone: +216 71 34 73 92
Fax: +216 71 33 10 17
|
Turkish
Epilepsy Society
January 2003-January 2005
New Elected Executive Board selected for January 2005-January 2007
President: Naci Karaagac
Istanbul University
Cerrahpasa School of Medicine
Istanbul, Turkey 34303
Phone: 902124143000/21836
Fax:902126330131
E-Mail:
Vice president: Baris Baklan
Dokuz Eylul University Medical Faculty
Neurology Dept. Inciralti 35340 Izmir
Izmir Turkey 35340
Phone:02324124056
Fax:+90 232 454 42 18
E-Mail:
Secretary: Betül Baykan
Istanbul University
Istanbul Faculty of Medicine,
Department of Neurology, Millet Cad Capa
Istanbul, Turkey 34390
Phone: 90-4142000-32393
Fax: 90-2125334393
E-Mail:
Treasurer: Naz Yeni
Istanbul University
Cerrahpasa School of Medicine
Istanbul, Turkey 34303
Phone: 902124143000/21078
Fax: 902126330131
E-Mail:
Member: Destina Yalcin
Member: Erhan Bilir
Member: Ibrahim Bora
As our largest biannual activity, the 4th National Epilepsy Congress was held in Ankara in June 2004. The meeting was very successful with more than 400 attendants. The speakers expert on related fields were invited to give various conferences. There were also video sessions, and discussion groups. Scientific projects and published articles in SCI-journals, the best oral and poster presentations were awarded as a support to our members making original contributions to epilepsy. In the epilepsy week in June 2003, a one-day meeting entitled “Rational treatment in epilepsy” was organized and a patient’s school followed this activity devoted to the questions of epilepsy patients and their relatives.
During the last two years, traditional monthly scientific meetings have been kept going in Istanbul. Each month, case reports and conferences were presented consecutively. Speakers from abroad or various Turkish universities were welcomed. The lectures were recorded and broadcasted on the web so that the members outside Istanbul could have the chance of listening the invited speakers.
Our web site was reorganized and devoted a part to epilepsy patients besides the clinician pages.
Regular reports of our activities were mailed to be published at Epigraph.
A post-graduate educational activity called “SPIKE” which was also supported by EUREPA and Turkish Neurology Society; was supported by our members. This activity included 15 nation-wide meetings with limited number of attendants with a purely interactive design.
The official journal of our chapter ,"Epilepsi" has been published regularly since 1995, as a result it was accepted to Turkish Science Index (ULAKBIM). It was also submitted to Index Medicus .
The 2 new trainers were elected for European Epilepsy Academy and they completed their training in December 2003 in Prague.
The commissions on epilepsy genetics, epilepsy surgery and education continued to work in their fields with regular meetings. The neuropediatrician Prof Dr Aysin Dervent and her colleagues established a new commission “Pediatric epileptology” and they met also regularly in Istanbul. The decision for establishing an epidemiology commission was also made.
General assembly of Turkish Epilepsy Society met in 28 January 2005 and new executive committee members were elected. Advices and plans for the following two years and adjustment of regulations to establish new local chapters were discussed.
|
UK Chapter
of the League
David Chadwick, President
Walton Centre for Neurology and Neurosurgery
Dept. of Neurology
Lower Lane
Liverpool L9 7LJ
UK
Richard Roberts, Treasurer
South Block Level 6
Ninewells Hospital
Dundee DD1 9SY
UK
Email:
Liam Gray, Secretary
Wessex Neurological Centre
Southampton General Hospital
Southampton SO16 6YD
UK
Email:
Ley Sander, International Liaison Officer
UCL Institute of Neurology
Queen Square
Chalfont St Peter
London WC1N 3B6
UK
Email:
Juliet Solomon, Manager and Membership Secretary
6th Floor
UCL Institute of Neurology
Queen Square
London WC1N 3BG
UK
Email:
Publications
- Epilepsy 2002: From Science to Patient, ed: JS Duncan,
SM Sisodiya, JE Smalls. Oxford, ILAE.
Meetings
- ILAE UK Branch Annual Scientific Meeting, Manchester,
2003
- Epilepsy teaching weekend for trainee neurologists in
Oxford, UK in Autumn 2003
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Officers of UK Branch of the ILAE have been actively
involved in supporting the Global Campaign
Future plans
- ILAE UK Branch Annual Scientific Meeting, June 2004,
Cardiff, UK
Summary Statement
The UK Branch of the ILAE continually strives to improve
the quality of epilepsy services in the UK.
|
Ukrainian
League Against Epilepsy
Sergey Kharchuk, President
103A, Frunze str.
04080 Kiev
Ukraine
Phone/Fax: +38(044)468-1655
Email: ulae-off@i.kiev.ua
Galina Maryek, Vice President
Phone: +38(044) 468-1655
Oleg Golubkov, Vice President
Phone: +38(0612)34-7563
Nataliya Zavyazkina, Secretariat
103A, Frunze str.
04080 Kiev
Ukraine
Phone/Fax: +38(044)468-1655
Email:
Georg Selykov, Treasurer
Email:
End of the term is 2005.
Publications
- Many publications produced by ULAE were published in
journal of ULAE Epileptology news edited from 2002.
Meetings
- 25-27 April 2002: The 6th Conference of ULAE; 8-9 November
2002: symposium "Medical Health Organisation for epilepsy
treatment and social problem in Ukrainian epileptology."
15-17 May 2003: 7th Conference of ULAE, "Age aspects
of epilepsy."
Summary of activities in 2002
and 2003
- The first number of ULAE journal Epileptology news edited.
The 6th and 7th Conferences of ULAE organised. The Training
Course in Kharkov Medical Academy of Postgraduate Education
organised in 2002. Training clinical (psychiatric) course
in epileptology in Kiev Epilepsy Center carried out.
Summary of activities in relation
to Global Campaign in 2002 and 2003
- Symposium "Medical Health Organisation for epilepsy
treatment and social problems in Ukrainian epileptology"
with participation of leading representatives carried out.
Appearances about problems of epilepsy in mass media. Social
studies in epilepsy.
Future plans
- 6-8 November 2003: Symposium of ULAE "Instrumental
diagnostic end epilepsy treatment prognosis." May 2004:
8th Conference of ULAE. Educational and other activities.
Summary Statement
ULAE is active working in organisation, scientific, educational,
and social fields.
|
United
States of America: American Epilepsy Society
Jeffrey L. Noebels, President
Baylor College of Medicine
Dept. of Neurology, NB220
One Baylor Plaza
Houston, TX 77030
USA
Phone: (713) 798-5860
Fax: (713) 798-7528
Email:
Daniel H. Lowenstein, First Vice President
University of California - SF
Dept. of Neurology
505 Parnassus Ave, Box 0114
San Francisco, CA 94143-0114
USA
Phone: (415) 476-1487
Fax: (415) 476-3428
Email:
Joan K. Austin, Second Vice President
Indiana University School of Nursing
1111 Middle Dr. NU 492
Indianapolis, IN 46202-5107
USA
Phone: (317) 274-8254
Fax: (317) 278-1811
Email:
Steven Schachter, Treasurer
Beth Israel Deaconess Medical Center
330 Brookline Avenue, KS-478
Boston, MA 02215
USA
Phone: (617) 667-4460
Fax: (617) 667-7919
Email:
Thomas P. Sutula, Past President
University of Wisconsin
Dept. of Neurology
H6/570 CSC
Madison, WI 53792
USA
Phone: (608) 263-5448
Fax: (608) 263-9405
Email:
Board Members
F. Edward Dudek
Colorado State University
Dept. of Anatomy & Neurobiology
Fort Collins, CO 80523
USA
Phone: (970) 491-2942
Fax: (970) 491-2623
Email:
John R. Gates
Minnesota Epilepsy Group
310 N. Smith Ave., Ste. 300
St. Paul, MN 55102-2383
USA
Phone: (651) 220-5290
Fax: (651) 220-5140
Email:
Jaideep Kapur
University of Virginia
Health Science Center
Box 800394
Charlottesville, VA 22908-0394
USA
Phone: (434) 924-5312
Fax: (434) 982-1726
Email:
John M. Pellock
Virginia Commonwealth University
P.O. Box 98021, MCU-VCU
Richmond, VA 23298-0211
USA
Phone: (804) 828-0442
Fax: (804) 828-6690
Email:
Michael Rogawski
NINDS/Epilepsy Research Section
49 Convent Dr. MSC 4457
Building 49, Rm 5A-75
Bethesda, MD 20892-1408
USA
Phone: (301) 496-8013
Fax: (301) 402-6778
Email:
Dennis Spencer
Yale University School of Medicine
333 Cedar Street
P.O. Box 208082
New Haven, CT 06520-8082
USA
Phone: (203) 785-2285
Fax: (203) 785-4161
Email:
M. Suzanne C. Berry, Secretariat
Executive Director
Email:
342 North Main Street
West Hartford, CT 06117-2507
Phone: (860) 586-7505
Fax: (860) 586-7550
Email:
Website: http://www.aesnet.org
Publications
- AES News
- Epilepsy Currents
Meetings
- 2002 Annual Meeting, Seattle, WA, 6-11 December 2002
- 2003 Annual Meeting, Boston, MA, 5-10 December 2003
Summary of activities in 2002
and 2003
2002
- Developed abstract archive and posted 2000 and 2001 abstracts
on Website
- Conducted member profile survey to feed Epilepsy Foundation's
physician referral database
- Added Epilepsy Currents content to the AES Website
- Epilepsia Supplement published from 2001 Monotherapy
workshop and 2001 Annual Course
- CD-ROM of the three scientific symposia from 2001 Annual
Meeting produced and distributed
- Published clinical reference material on AEDs on the
Website
- AES funded 11 graduate fellowships and 10 postdoctoral
fellowships and/or grants
- AES has partnered with EF and NINDS in a targeted pediatric
research program
- AES granted funds to four Research and Training Workshops
during 2002
- AES is already active in the AAN Communications Workgroup
that met in 2002
- The 2002 Annual Meeting had an active Press Room.
Summary of activities in relation
to Global Campaign in 2002 and 2003
- In 2002, AES maintained a press room at the Annual Meeting,
which helped to foster over 200 media placements in the
month surrounding the conference. Materials in the room
were from many epilepsy-based organisations.
- The 2003 edition of the press room will again welcome
informational releases from similar organisations with the
intent of building on the success of 2002's press room.
In addition, the press room has gone online and is accessible
through the AES annual meeting page of the AES Website.
- AES has also hired a director of communications to provide
input on marketing and public relations.
Future plans
- Define and implement a joint, external marketing and
communications plan or effort with the Epilepsy Foundation,
NINDS, NIMH, and ILAE
- Establish a public information office with cooperating
agencies
- Develop mechanisms for the dissemination of practice
guidelines and position policy statements that reinforce
AES's strategic direction
- Enhance the AES Website to make it an indispensable source
of professional education and services worldwide
Summary Statement
The 2003 Annual Meeting will be held in Boston, MA, which
remains one of the more popular conference destinations. This
year's conference will boast a new format, which streamlines
the activities and allows the conference to end a day earlier
without compromising any of the content. The Society is also
continuing to build a Web education program, which will allow
members to participate in activities on their own schedules.
AES has also donated funds to ILAE to support international
attendance at the IBE & ILAE 25th International Epilepsy
Congress in Lisbon, Portugal. AES has hired a director of
communications to improve Society marketing and public relations.
Finally, the American Epilepsy Society would like to extend
our sincerest thanks to the Society leaders and sponsors who
have helped to make 2002-2003 two of the Society's most successful
years and who helped to poise AES for the future.
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Uruguayan
League Against Epilepsy
Diana Yorio, President
Domingo Cullen 723 Ap. 501
11300 Montevideo
URUGUAY
Phone: +598 27 11 98 72
Fax: +598 27 10 18 43
Email:
Isabel Rega, Vice President
Luis A. de Herrara 1134 Ap. 2
11300 Montevideo
URUGUAY
Phone: +598 26 28 43 01
Email:
Patricia Braga, Secretary General
Verdi 4269
11300 Montevideo
URUGUAY
Phone: +598 26 13 39 25
Email:
Alejandro Scaramelli, Past-President
Email:
Esmeralda Borriano, Secretariat
Email:
End of the term for the present Executive Committee: November
2003
Publications
- Revista Uruguaya de Epilepsia _ periodic publication
of our local chapter that includes case reports, scientific
reviews, calendar information on international, regional
and local epilepsy meetings
- Epilepsias. In: Pautas de Tratamiento en Neurología.
Ed: Instituto de Neurología. Montevideo, 2002
Meetings
- May 2002, "Update on clinical and therapeutic aspects
in epilepsy" in the frame of the lifelong learning
program in neurology developed by the Universidad de la
República, Postgraduate School
- 4 April 2003, "Epilepsies in Childhood," Scientific
meeting organised by the Uruguayan League Against Epilepsy,
addressed to general pediatricians and neuropediatricians
Summary of activities in 2002 and 2003
- 2002-2003: Advisory activities for different specific
populations: staff of nursing homes for neurologically handicapped
patients, trainees specializing in teaching neurologically
disabled children
- 2002: Proposal of driving license rules for epileptic
patients
- 2002: Active participation in 2nd Latin American Congress,
Foz de Iguazu
- 2003: Participation in Annual Rural Medicine Congress
- 2002-2003: Progress in our local Epilepsy Surgery Program,
with the support and advice of P. Williamson and D. Roberts,
on behalf of the ILAE Commission on Epilepsy Surgery, through
Program of Epilepsy Surgery in Developing Nations
Summary of activities in relation to Global Campaign
in 2002 and 2003
- Participation in the media (radio and TV health-related
programs)
- Interviews in local press
- Celebration of Latin American Epilepsy Day (9 September)
Future plans
- Course on "Update on clinical and therapeutic aspects
in epilepsy" part of the lifelong learning program
in internal medicine, developed by the Universidad de la
República, Postgraduate School, to be held at the
Annual Internal Medicine Congress, November 2003
- Advisory activities related to seizure management, addressed
to police officers
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Venezuelean
League Against Epilepsy
Beatriz Gonzalez del Castillo, President
Quebrada Honda a Santa Rosa
Edificio Tachira, Planta Baja, Mariperg
1040 Caracas
VENEZUELA
Phone: +58 25 76 30 81
Fax: +58 25 72 83 70
Email:
Euse Beatriz Blanco Montes, Secretary General
- Regional Symposium made in Merida-Merida.
- Regional Symposium made in Zulia, Maracaibo.
- Regional Symposium made in Valera, Trujillo.
- We gave conferences to students about diagnosis, prevention
and treatment of epilepsy at the Medical School during the
year. (Under the Global Campaign)
- We gave conferences to high school teachers during the
year. (Under the Global Campaign "Out of the shadows")
- Conferences on Bioethics and Epilepsy for the Faculty
of Medicine.
- We gave conferences about epilepsy to the post-graduate
doctors in different areas during the year.
- Symposium about epilepsy "Out of the Shadows"
to the public, made in Caracas at the end of June.
- Happy Day for Epileptic children in the expanded Zoo
to be held on 15 September.
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Yugoslav
Union of Leagues Against Epilepsy
Nebojša J. Jovic, President
Dept. of Neurology and Psychiatry for Children and Youth
Dr Subotica 6a st. (Head Office)
Beograd 11 000
Serbia and Montenegro
Yugoslavia
Phone: +381 11 65 83 55
Fax: + 381 11 64 50 64
Email:
;
Website: www.info-yulae.co.yu
Vice Presidents
Dragoslav V. Sokic (Belgrade, Serbia)
Slavica Vujisic (Podgorica, Montenegro)
Ksenija Bozic (Novi Sad, Vojvodina)
Natasa Petrovic (Banja Luka, Republic of Srpska)
Mirjana Spasic, Secretary General
Clinic for Neurology, Clinical Center Nis
Brace Taskovica 48 st.
18 000 Nis
Serbia and Montenegro
Yugoslavia
Phone/Fax: +381 18 333 772
Email:
Marko D. Ercegovac, Treasurer
Clinical Center of Serbia, Institute of Neurology
Dr Subotica 6 st.
Beograd 11 000
Serbia and Montenegro
Yugoslavia
Phone: +381 11 684 355
Fax: +381 11 684 577
Email:
Ksenija Gebauer-Bukurov, Secretariat
Institute of Neurology, Psychiatry and Mental Health
Hajduk Veljkova 1 st. 21 000 Novi Sad
Serbia and Montenegro
Yugoslavia
Phone: +381 21 29 232
Fax: +381 21 26 52
Email:
Nikola Vojvodic
Clinical Center of Serbia, Institute of Neurology
Dr Subotica 6 st. 11 000 Beograd
Serbia and Montenegro
Yugoslavia
Phone: +381 11 68 43 55
Fax: +381 11 68 45 77
Email:
End of term is 2005.
Publications
- Books: "Selected topics in epileptology I and II"
appeared in 2002
- Full papers of Symposium "Life Ages of Lamictal"
sponsored by GlaxoSmithKline special publication
- Proceedings (1st and 2nd Symposium of developmental neurology;
epilepsy and migraine)
- "Selected topics on epilepsies of childhood and adolescence,"
publication appeared in 2003 for the education course (spons.
by Sanofi-Synthelabo)
Meetings
- Co-organisation of the 1st Symposium of Developmental
Neurology (Belgrade, 14-15 June 2002)
- Satellite symposium on epilepsy and migraine (Novi Sad,
5-7 December 2002)
- Co-organisation of the 2nd Symposium of Developmental
Neurology: Treatment strategies and options (Belgrade, 15-17
May 2003)
- Co-organisation of the 35th International Danube Symposium
for Neurological Sciences & Continuing Education (Belgrade,
11-14 September 2003)
- Educative course: Selected topics on epilepsies of childhood
and adolescence (November 2003)
Summary of activities in 2002 and 2003
- Organisation and co-organisation of national and international
meetings
- Continuing education in epileptology and clinical electroencephalography
- Participation in Multicentre Study of Early Epilepsy
and Single Seizures (conducted by D. Chadwick, Liverpool,
UK)
- Participation in the project of EURAP (European registry
of AEDs and pregnancy)
- Participation in the multicentre project on West's syndrome
- Collaboration with a number of other national Leagues
Against Epilepsy (national meetings and publications)
Summary of activities in relation to Global Campaign
in 2002 and 2003
- In coordination with the Yugoslav Society for Epilepsy,
Chapter organised lectures on a) Epilepsy and sporting activities;
b) School children with epilepsy and stigma.
- Educational and public-awareness activities were developed
for the press and visual media.
Future plans
- Epilepsy school: continuing education on selected topics
for neurologists, child neurologists, pediatricians, psychiatrists
and other professions allied to medicine (with closer collaboration
with EUREPA)
- Initiation of the national journal of epilepsies, edited
by the League
- Initiation of the program "Genetics in Epilepsy"
(PCR Center in Belgrade)
- Contacts with authorities concerning the national epilepsy
registry
- 2nd Epilepsy Congress of Serbia and Montenegro, 2004
Summary Statement
Since 1966 our Chapter organised many forms of professional
activities. It was disrupted during the tragic last decade.
Our Chapter has tried to achieve a better position in the
development of epileptology and education.
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Zimbabwe
League Against Epilepsy
Jens Mielke, President
2 Josiah Tongogare Avenue
Harare
ZIMBABWE
Phone: +263 47 91 631/ +263 47 91 030
Email :
Douglas Ball, Secretary General
P.O. Box A178 Avondale
Harare
ZIMBABWE
Phone: +263 47 90 233
Fax: +263 47 90 233
Email:
Douglas Mzengi, Treasurer
P.O. Box WGT263 Westgate
Harare
ZIMBABWE
Phone: +263 47 92 020
Lawrence F. Levy
c/o Dept. of Pharmacy
P.O. Box A178
Avondale
Harare
ZIMBABWE
Phone: +263 47 90 233 |
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